Cfs And Pots

[Daphne1]

futurhope,

I'm sorry to hear you landed in the emergency room when you tried the treatment of that alternative doctor.

Yes it's really difficult to decide what to do, I don't want to quit to soon and that I didn't give it a good try, but I also don't want to damage my body.

Yes, I'll let you know what I decide to do!

Daphne

[juliegee]

I just wanted to weigh in one more time, especially to those of you who are skeptical . I do think there is something here- I do think that most dysautonomia patients could benefit from a probiotic. That said, I am not buying the idea that the SIBO causes the autonomic dysfunction (although it bears more research.) I suspect that the dysautonomia causes the GI tract to slow down and the subsequent conditions are perfect for a SIBO to develop. I know that many here, myself & my son included, had GI symptoms precede their autonomic dysfunction DX.....but isn't it more likely that we HAD the underlying dysautonomia (and it was just unDXed) before the GI symptoms?

Also, I wonder about the complicated antibiotic regimen that Daphne describes . We use a relatively short dose of Xifaxcin here in the US for a quick SIBO treatment. Flagyll used to be the treatment of choice, but Xifaxcin has fewer side effects. Why would all of those different antibiotics be necessary?

And, I suspect that there are MANY different probiotics that are helpful. Culturelle works wonder for us. We use it daily & NO SIBO's since .

Thanks for bringing this information to our attention AND I'm very happy you found a creative, supportive, understanding doctor, who is willing to think outside of the box. They are very rare indeed & you are very lucky to have such support.

Julie

[ramakentesh]

This is just another 1 of maybe 200+ theories out there on the root cause of the loose entity terms 'CFS' and a fringe one at that.

Most of the good research on CFS and related disorders now days is concentrating on the autonomic and nervo-vasocular system where testable abnormalities are nearly always present.

[juliegee]

This is just another 1 of maybe 200+ theories out there on the root cause of the loose entity terms 'CFS' and a fringe one at that.

Most of the good research on CFS and related disorders now days is concentrating on the autonomic and nervo-vasocular system where testable abnormalities are nearly always present.

Yes, good point.....but the HIGH number of CFS and dyautonomia patients with slow GI tracts (just look at the # on our forum!) and subsequent SIBO's is hard to ignore and certainly lend some credence to this theory.