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Does anyone have problems with swallowing? There are several issues I have with it: 1. It hurts, 2. It feels like tiny bits food and water go down my windpipe instead and get on my lungs 3. I feel like my pipes are double jointed and click in and out of joint.

I've heard that this could be an EDS thing - does anyone else have it?

It scares me that this can suddenly happen. There I am rattling along with my collection of random autonomic symptoms and here comes another one out of the blue..

Janey

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Does anyone have problems with swallowing? There are several issues I have with it: 1. It hurts, 2. It feels like tiny bits food and water go down my windpipe instead and get on my lungs 3. I feel like my pipes are double jointed and click in and out of joint.

I've heard that this could be an EDS thing - does anyone else have it?

It scares me that this can suddenly happen. There I am rattling along with my collection of random autonomic symptoms and here comes another one out of the blue..

Janey

Yes, when my dysautonomia is bad, I have trouble with swallowing. When I'm relatively well, swallowing is an automatic reflex. When I'm poorly, I have to really T-H-I-N-K about it to swallow. It is difficult. My throat feels tight. It's like my body forgot how to do it, so I have to purposely take over a function that used to be automatic. For me, this is much worse when I'm on beta blockers. They exacerbate my MCAD.

Also, I do have problems with acid (not food) in my windpipe and lungs when my GERD is not well controlled. If you are getting food in your lungs....that's bad (so is acid- OUCH!) Talk to your doc about this ASAP.

Julie

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Thanks so much for your reply, that has really helped me. And you're right, that's the same. When I wake up in the morning I feel like I've got a layer of acid on my lungs and when I drink a glass of water, I always feel like a few drops go down my windpipe. I just emailed my dysautonomia specialist about this and he sent me an email straight back (now that's good service!) and said it was a "very interesting symptom" and that he needed to consult with his colleagues about what should be done. Hope they can think of something. I don't want to vomit and then have it in my lungs..

Janey

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I have had the same thing start recently. I sit there needing to swallow and I can't.. It almost makes me panic! I have to go get a drink and I can swallow then. Scary!

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