dont no anymore

[hayley]

hey everyone ive just come out of hospital had new symptoms didnt no if they were related to pots or not.anyway ive been sent home still then same.i thought that as id been diagnosed with pots they would take me seriously but they didint again.i didnt think id have to battle with them again.theres one thing thats changed.i had my bp checked frome lying to standing and it used to go down but it went from about 112 to 154 dont no the bottom numbers but i dont no why its changed.i also hurt my wrist ive torn the ligaments in it and i did it in hospital so i came out with something extra wrong.my backs causing so much agony i cry with pain. i tried so hard to get a scan of it i even passed out when my neck was tilted but one doctor said he do it then i saw another and he said nothing will show up making out i was crazy and sent me home. they were questioning ms becuase of all my weakness and new symptoms and shocks down my back but that went out the window aswell . so i was in a weekhaving nothing done.but im going in hospital in november anyway to have loads of tests under a specialist who knows what he doing instead of giving painkillers that always seems to be there answer to everyting anyway just bit down,.

[MomtoGiuliana]

hayley

So sorry you are having such a difficult time. I don't know what your history is exactly. But, it sounds like you need to see a specialist who will be pro-active in helping you find a treatment that will help you.

Regarding blood pressure, I have experienced both significant increases and decreases in blood pressure from sitting to standing. I suspect it is common with POTS to have such large variations in blood pressure, as it is something we don't regulate too well when we are in a flare-up mode.

Have you had a back injury in the past? I also remember having strange, very painful back pain episodes when my POTS was very bad. It was also blown off by doctors. I don't have it anymore, but I still wonder what in the world was causing it b/c it was quite painful and I have never injured myself.

Thinking of you, and believe better days are ahead for you.

Katherine

[hayley]

thankyou for replying .i havent had a back injury i had a lumber puncture a year ago and since then theres been alot of pain and pressure on my spine like something is pushing on it it keeps me awake all night.thankyou again its nice to hear some kind words.

[geneva]

HAyley, sorry to hear you are going through a difficult time. It can be so frustrating to be in pain and have to fight your way with the doctors in the ER. I so hope you will get some useful information from the specialist you are seeing in November. Sorry you have to be in the hospital for tests but perhaps they will give him more solid information that will help you improve.

With regard to BP mine rarely drops when I stand up and I have learned that in the first few minutes of standing it will increase but if I wait 10 minutes and take it again standing, it usually has dropped back to its "norm". My experience is that in the ER they don't really get too concerned with BP unless the second number is 100 or over and this is true for other family members who I have taken to the ER.

I hope you feel better soon.