erikainorlando Posted July 9, 2009 Report Share Posted July 9, 2009 I thought this was funny...my boyfriend says he has a head cold...asked me if my head hurt. I said it always hurts!!! I also always have a bit of a runny nose...specially when I am very POTSY. But I do have a very sore throat (sometimes I just feel liked I am being choked tho from POTS) and my ear hurts. My body hurts but really my body always hurts. More when I do anything...but I guess more will be revealed. BUT I have not had any illness other than POTS since its onset. I wonder if this is because my immune system is a little overactive...not sure... Erika Quote Link to comment Share on other sites More sharing options...
iheartcats Posted July 9, 2009 Report Share Posted July 9, 2009 Just be sure to drink enough liquids, try to eat, etc. when you get a cold/flu. It's always worse with POTS. Quote Link to comment Share on other sites More sharing options...
bizbiz Posted July 9, 2009 Report Share Posted July 9, 2009 I second what Cat Lady said - drink a lot of fluids! And take some Vitamin C if you can.I must say, you are very lucky in that you haven't been very sick since your POTS onset. I seem to have caught every cold or flu going around! My immune system is not coping well Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted July 9, 2009 Report Share Posted July 9, 2009 its weird - id almost suggest that my immune system is super strong now - i havent had a cold in years and i never seem to catch them. When I do I always feel better. I have no idea why - and this is unusual for POTS. Quote Link to comment Share on other sites More sharing options...
erikainorlando Posted July 9, 2009 Author Report Share Posted July 9, 2009 I used to get everything everyone else had but since POTS I think my immune system is super strong like Ramakentesh. Is it that autoimmune system being overactive I wonder?Also, I was very tired last night (it was my sons birthday). So I slept a long time and pretty much feel my normal POTS stuff today............Erika Quote Link to comment Share on other sites More sharing options...
iheartcats Posted July 9, 2009 Report Share Posted July 9, 2009 its weird - id almost suggest that my immune system is super strong now - i havent had a cold in years and i never seem to catch them. When I do I always feel better. I have no idea why - and this is unusual for POTS.Before POTS I seemed to catch flu/colds, etc. I've had a bad flu and minor cold or two...but nothing like I used to. No strep, etc.Ram - be sure to let us know if something 'heals' you because we seem to have similar POTS issues. LOL Quote Link to comment Share on other sites More sharing options...
toddm1960 Posted July 9, 2009 Report Share Posted July 9, 2009 Put me in the group that hasn't had a cold, it's been 4 years since I've had one. It's like my immune system is on overdrive, my wife and kids all have been sick around me and I've caught nothing. Quote Link to comment Share on other sites More sharing options...
potsgirl Posted July 10, 2009 Report Share Posted July 10, 2009 I seem to catch MORE colds and crud going around since I've been diagnosed with POTS. And when I do get something, it seems to take three times as long to get over it. I have a friend here in town with POTS, CFS, etc, who is the same way. I know it sure hasn't helped my allergies at all, though of course they're not the same as a general illness. I'm really careful to wash my hands often and to try not to touch handrails, door knobs, and other items the general public generally uses. I'm not crazy about it, just try to be smart and not spread germs.Erika, whether it's a cold or not, I hope you're feeling better soon! Cheers,Jana Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted July 10, 2009 Report Share Posted July 10, 2009 very strange - maybe boosted immune systems occur in some forms of POTS. I might follow that up. Quote Link to comment Share on other sites More sharing options...
potsgirl Posted July 10, 2009 Report Share Posted July 10, 2009 if you do, please let me know what you find out. I have POTS, but also suffer from severe hypotension. I'd be willing to help if need be...Thanks, Jana Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted July 11, 2009 Report Share Posted July 11, 2009 we can start here and now I guess:Everyone who has replied please describe your symptoms, onset (very important), whether you wax and wane, pool (where if you do), vasoconstrict (cold feet/hands), adrenal symptoms (postural hypertension, anxiety). Quote Link to comment Share on other sites More sharing options...
toddm1960 Posted July 11, 2009 Report Share Posted July 11, 2009 I'll be the first:My worst symptom is exhaustion, extreme exhaustion, HR in the 120 when standing. Symptoms started in 1987 and have waxed and waned until 2005, since then it's been non-stop. I'm a normal flow stomach pooler, I get very bloated with any food or activity. When I'm pooling I get cold hands and feet ( never turns blue ) and I have postural hypertension. Quote Link to comment Share on other sites More sharing options...
erikainorlando Posted July 11, 2009 Author Report Share Posted July 11, 2009 Alright. I got POTS after a virus last Sept. I also had a previous autoimmune syndrome (guillain barre) for what it is worth. HR gets very high on standing...150+ on TTT. I do not have BP problems.I pool in my feet....they turn red/purple when I stand. They are always cold. BUT...I do have significant nerve damage in my feet and lower legs from guillain barre syndrome which I am sure doesn't help. Main complaint is weakness, chest pain, very ill after any activity. Headaches too. But it is probably the "sick" episodes I get after activty or being upright for too long that are the worst. Oh...and I feel ilike I have been run over by a bus...all the time.Thanks and thats it for me!! Erika Quote Link to comment Share on other sites More sharing options...
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