Nauthiz Posted June 28, 2009 Report Share Posted June 28, 2009 Does anyone else have this correlation where your headaches always seem to develop in the same spot? It doesn't seem like it is always the same reason for the headaches but they always develope on the back left side of my head and sometimes the left side over my ear. Quote Link to comment Share on other sites More sharing options...
firewatcher Posted June 28, 2009 Report Share Posted June 28, 2009 Does anyone else have this correlation where your headaches always seem to develop in the same spot? It doesn't seem like it is always the same reason for the headaches but they always develope on the back left side of my head and sometimes the left side over my ear.ALWAYS, never changes place, just intensity. Left side, back of skull, up and over the ear to behind the eye and deep inside the ear. I think it is the trimengial nerve or the occipital nerve or both. Quote Link to comment Share on other sites More sharing options...
Nauthiz Posted June 28, 2009 Author Report Share Posted June 28, 2009 Does anyone else have this correlation where your headaches always seem to develop in the same spot? It doesn't seem like it is always the same reason for the headaches but they always develope on the back left side of my head and sometimes the left side over my ear.ALWAYS, never changes place, just intensity. Left side, back of skull, up and over the ear to behind the eye and deep inside the ear. I think it is the trimengial nerve or the occipital nerve or both.lol thats funny we have it in the same spot! Does your ear ever feel wierd on the inside? Like clogged or something? Quote Link to comment Share on other sites More sharing options...
firewatcher Posted June 28, 2009 Report Share Posted June 28, 2009 My allergist says that my ear canal swells. If my BP goes up, my ears will clog like I have an infection. That eye will also get bloodshot, the veins in that eye will be larger than the other eye. Quote Link to comment Share on other sites More sharing options...
potsgirl Posted June 28, 2009 Report Share Posted June 28, 2009 Yes, I get headaches/migraines in the same spot. Mine are located at the base of my brain, my cerebellum, and into my upper spinal area. That area is also painful to the touch. When I get these headaches, only prescription pain killers will help, and they can last for weeks. Hope yours aren't as long-lasting!jana Quote Link to comment Share on other sites More sharing options...
firewatcher Posted June 28, 2009 Report Share Posted June 28, 2009 Yes, I get headaches/migraines in the same spot. Mine are located at the base of my brain, my cerebellum, and into my upper spinal area. That area is also painful to the touch. When I get these headaches, only prescription pain killers will help, and they can last for weeks. Hope yours aren't as long-lasting!janaI've had mine every day for over 3 years. Quote Link to comment Share on other sites More sharing options...
potsgirl Posted June 28, 2009 Report Share Posted June 28, 2009 YOU WIN! You poor, poor woman. I think the longest of mine was maybe 4-5 weeks, and I thought I'd never make it! What do you take for them?jana Quote Link to comment Share on other sites More sharing options...
firewatcher Posted June 28, 2009 Report Share Posted June 28, 2009 Klonopin, they tried Lyrica but it did not last long enough. The neuro at Vandy suggested Topamax, but I can't try it till I get my kidneys checked. Quote Link to comment Share on other sites More sharing options...
Nauthiz Posted June 29, 2009 Author Report Share Posted June 29, 2009 another strange thing id like to add too this pretty much all my pain is on one side. I get back pain burning type pain as if acid reflux or something on the back left side of my chest, soemtimes chest pain on left side, also sometimes abdominal pain on left side, like i feel my digestion make sounds on my left side too. Anyone else like this? Except my throat pain is usually both sides. Quote Link to comment Share on other sites More sharing options...
bizbiz Posted June 29, 2009 Report Share Posted June 29, 2009 Headache always in the same spot - left side, base of skull. Also, when I get chest pressure or a sensation like I cannot breath, it always feels worse / tighter on the left side. Quote Link to comment Share on other sites More sharing options...
arizona girl Posted June 29, 2009 Report Share Posted June 29, 2009 I've been getting headaches in the same location as well. Usually too, the vein/artery that runs near the temple is completely indented. I've found that taking a sudafed calms it down. Aspirin, advil nor darvocet get rid of it. I've wondered about the sudafed and it's effects on the adrenaline. I'm still waiting to get more testing to find out what variant I have. The salt loading didn't help me much and the beta's were making the hypertension worse. I'm taking 5 mg inderal only to keep the heart rate down. Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted June 29, 2009 Report Share Posted June 29, 2009 I get a few different types - ear pain and back of head pain are prettymuch daily issues. I also get migraines which are always one-sided and based on my left side - but I pray for the pain to start because my auras are truly hellish... I also get daily optical migraine aural things - flashing lights, tunnel vision, visual snow constantly for like years... Betas making the hypertension worse? You have postural hypertension? Quote Link to comment Share on other sites More sharing options...
Nauthiz Posted June 29, 2009 Author Report Share Posted June 29, 2009 I get a few different types - ear pain and back of head pain are prettymuch daily issues. I also get migraines which are always one-sided and based on my left side - but I pray for the pain to start because my auras are truly hellish... I also get daily optical migraine aural things - flashing lights, tunnel vision, visual snow constantly for like years... Betas making the hypertension worse? You have postural hypertension?yeah doc said my postural was hyper Quote Link to comment Share on other sites More sharing options...
arizona girl Posted June 29, 2009 Report Share Posted June 29, 2009 I get a few different types - ear pain and back of head pain are prettymuch daily issues. I also get migraines which are always one-sided and based on my left side - but I pray for the pain to start because my auras are truly hellish... I also get daily optical migraine aural things - flashing lights, tunnel vision, visual snow constantly for like years... Betas making the hypertension worse? You have postural hypertension?Yes rama, after 4 beta's I realized they lowered heart rate but made my hypertension worse. Also relaxer's like flexeril and tizindine gave me rebound hypertension the next day. My BP is really high again today without anything yet. I know real low dose inderal does bring my heart rate down. I'm wondering if the headaches are being caused by the orthostatic hypertension. Until I get more tests done I'm at a loss on how to treat the hypertension. Of course lying down always works. Quote Link to comment Share on other sites More sharing options...
jenwic Posted June 29, 2009 Report Share Posted June 29, 2009 That is so strange! My headaches are always on the back left at the base of my skull too. They start there then the pain can shoot through my head and over my left eye. If I let it go too long with no painkillers I can get nauseous. Quote Link to comment Share on other sites More sharing options...
janiedelite Posted September 1, 2009 Report Share Posted September 1, 2009 That is so strange! My headaches are always on the back left at the base of my skull too. They start there then the pain can shoot through my head and over my left eye. If I let it go too long with no painkillers I can get nauseous.This must be more than coincidence, but since my POTS really hit hard last year I've been getting stabbing headaches going from my left eye and temple down to my ear. My ear canal gets swollen too. I also get left upper quadrant abdominal pain which gets worse an hour or two after I eat. Whenever I get this headache, I always get this abdominal pain. I have orthostatic hypertension too. My last episode of abdominal pain lasted over 3 weeks (I needed to lose a few pounds anyway ). But I had the bad headache for 2 weeks when it usually lasts less than a week. My PCP said I've been having abdominal migraines, but I read that those are mostly in kids and have a poorly localized presentation. My pain is always left upper quadrant in my abdomen. I have diagnosed small bowel dysmotility... maybe the stress of the migraine make my GI tract less functional.Like traditional migraines movement, light, and sound aggravate my headache. But I get a worse headache when lying down too (maybe from the orthostatic hypertension? and too much blood flow?). Just grabbing for straws here. But standing doesn't help either... makes it worse too. Sorry, I know this is an old thread, but I just think my sudden onset of migraines when POTS kicked in with pain in my left temple was more than a coincidence after reading everyone's posts. Quote Link to comment Share on other sites More sharing options...
jodiff Posted January 3, 2018 Report Share Posted January 3, 2018 Anxiety can cause a multitude of symptoms that will have you thinking that something is really wrong with you. You can google "the Linden Method" if you want. I'm pretty sure it saved my life a few years ago. Quote Link to comment Share on other sites More sharing options...
mountain girl Posted January 3, 2018 Report Share Posted January 3, 2018 I think it is fine to bring up an old thread:) Interesting to read others often get headache pain on the left side, which is where mine starts. It usually starts behind my left eye and hurts so bad I cannot keep it open, then often gets behind both eyes. I read some place that behind the eyes is a common place for migraine pain. I had not known that before. I am curious to know what you guys take for your migraines. I used to take Cataflam, but then it stopped working, and the doctor ordered Hydrocodone/APAP, which always works. It sometimes will come back if I get out of bed to do something simple, like brush my teeth or get ready for bed, or think I am feeling good enough to go to the kitchen to eat supper, and then have to lay back down. My doctor just retired, and knew it may become an issue that another doctor may not feel comfortable ordering the Hydrocodone/APAP, which is exactly what has happened. He was not even nice about it. Anyhow, my nephew has used Imitrix, not sure of the spelling, but it is for migraines. Has anyone used that? Has anyone else run into the problem I am having now with a doctor not wanting to order a narcotic pain med for migraines? I have been on it as needed for 2 years, so I am not abusing them, but I hear on the news all the time about the pain med addiction problem, which is making it difficult for those who are using it appropriately. I do understand the doctor's view point, I just do not agree with it. Quote Link to comment Share on other sites More sharing options...
GardenGal Posted January 5, 2018 Report Share Posted January 5, 2018 Yuuuuup. An inch behind my left eye Quote Link to comment Share on other sites More sharing options...
p8d Posted January 5, 2018 Report Share Posted January 5, 2018 Behind my left ear. The two dysautonomia neurologist specialists I’ve seen have told me explicitly not to take any opioids so the most I can take is Fioricet and not more than three times a week and preferably not on consecutive days to avoid rebound headaches. One suggested increasing my beta blocker or trying topiramate as preventative. I’m trying the increased beta blocker which is helping somewhat. I also have a product called an IceKap which is a baseball type hat with pockets to put in ice packs. It works pretty well but I still need a dark quiet room for the bad ones. Quote Link to comment Share on other sites More sharing options...
KiminOrlando Posted January 5, 2018 Report Share Posted January 5, 2018 I take topirimate. I didn't think it really worked until I had to go off of it for a month so that it didn't interact with another short term med I needed. After that experience, I will need a very compelling reason to stop topirimate again. It doesn't stop the headaches, but it lessens the frequency and intensity for me. I can still get a migraine, but not 3 or 4 times a week like I used to. Just be aware that topirimate is a med that does not mix well with several other meds, so all of your doctors need to know you are on it. They also need to do a complete med check, including herbals, supplements and the 'as needed' meds we take before prescribing this drug. It may not work for everyone, but might be worth asking your physician. It is an anti-seizure med, so your insurance may consider it an off lable use. Quote Link to comment Share on other sites More sharing options...
Samantha91 Posted January 7, 2018 Report Share Posted January 7, 2018 I always had headaches in the same place behind my left eye. I recently just got my daith pierced (part of the inner ear) which is a pressure point. Got it done 3 weeks now and I have not had one headache!!! Getting it done hurt a lot but sooooo worth it! Quote Link to comment Share on other sites More sharing options...
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