Ernie Posted October 8, 2004 Report Share Posted October 8, 2004 Hi everyone,It's been 3 weeks that I am going to an acupuncturist. I think it is helping me. I have more energy and less adrenal gland pain.Today I went to see him. He is also a medical doctor. During the treatment I felt an adrenaline rush. So I took my time to leave the house but I fainted in the middle of the street. I was lucky that he also has doctors has neighbours. So they took good care of me but they had trouble carrying me because everytime they put me upright I fainted again. So I ended up lying down on the street for 15 minutes. I was kind of worried that I car would run over me. My doctor-acupuncturist brought me in his house and did a 2nd treatment to revive me. Nothing was working at first but in last resort he did a treatment for people who are found dead after drowning and it worked on me!!! No wonder I feel so half-dead when I have an episode. He was very nice. He let me sleep it off and then served me lunch. Now I am just a couch potato waiting to be my "normal self" again.I am getting more and more scared of going out alone (which I rarely do). This is the 5th time I faint in parking lots or in the middle of the road and I wonder if one day a car will run over me. I just don't want to be a prisoner of my house.Do you understand me?Ernie Quote Link to comment Share on other sites More sharing options...
morgan617 Posted October 9, 2004 Report Share Posted October 9, 2004 wow ernie! how awful. i guess i can't relate, because i don't have syncope. but i don't drive or go places by myself because i am a walking stroke. so for different reasons, i guess i understand. i tried acupuncture once and felt awful, then when to someone else and it was great. just want you to know, i am sorry you are going through this and i am thinking of you. morgan Quote Link to comment Share on other sites More sharing options...
blackwolf Posted October 9, 2004 Report Share Posted October 9, 2004 Dear Ernie,I'm sorry you are having all this trouble. I haven't blacked out for a little while lately, but I sure have gotten close. I was at the same stage you are and I hope not to go there again, at least for awhile. I haven't been out on my own, except to walk the dog, for 3 years now. And yes, I've taken the "plunge" in the road and in many parking lots. No one has run me over yet. Not funny I know(bad girl).As to being a human pin cushion, tried it a few times and got worse so I didn't go back.Good luck with your treatments,Blackwolf Quote Link to comment Share on other sites More sharing options...
corina Posted October 9, 2004 Report Share Posted October 9, 2004 Hi Ernie,I'm very sorry you have all this problems. I don't have this fainting all the time like you do but I can't get out of the house on my own because off balance problems, dizziness, bad walking etc. And this is what's making life miserable for me (besides all the other POTS stuff) because people aren't always around to take me out. In summer I can sit in my garden, which I love to do but I'm alone and have no one to talk to. No that it's autumn and getting colder I'm desperately inviting people to come over and drink a cup of coffee with me and most of all: talk! I'm lucky that our youngest son comes home during lunchtime but when he's going to another school next year he will go to another city and will be gone for the whole day. Our oldest son is at school nearby but is in school untill about three o'clock, does his homework and goes out to sport. So I can't help you very much with this, except for inviting people over to your house (but I don't know if that's a common thing to do in your country, in Holland it is and this can help me through the day). Wish you the best in recovering from this bad adventure you had,Corina Quote Link to comment Share on other sites More sharing options...
yogini Posted October 9, 2004 Report Share Posted October 9, 2004 Ernie,I can relate to you. I live in New York City. I have had severe tachycardia attacks while walking on the street and/or riding the bus and I have had to lie down in the middle of the street to make it go away. So far, my attacks have come on gradually. I wear a pulse monitor watch, and when I see my pulse climbing, I call my family or friends on my cellphone to come and get me if needed. Or sometimes I just call them to stay with me on the phone until the tachycardia goes away. And total strangers have been really nice and helpful for the most part too. But I am petrified that I will faint and that people will leave me there in the middle of the street, that I will hit my head on the sidewalk, get mugged, etc. I just ordered a MedicAlert bracelet, and I think that will help to ease my fears. But I think I have a milder form of POTS than you. I have not fainted yet (knock on wood)! Since you faint so often, I really am worried about something happening to you when you are by yourself. So I think that it's good that you are mostly staying home, even though I know it's really frustrating and boring. As your acupuncture and other treatments start to work, you can slowly develop the confidence to go out by yourself. Hang in there! Quote Link to comment Share on other sites More sharing options...
Ernie Posted October 9, 2004 Author Report Share Posted October 9, 2004 Thank you so much for your support. It means very much to me.I hate having to tell my fainting stories because it seems I am repeating myself over and over again. Sometimes I wish I had something interesting to tell you like I am back to work or I am normal. I hope I am not boring you with my problems.Ernie Quote Link to comment Share on other sites More sharing options...
JLB Posted October 9, 2004 Report Share Posted October 9, 2004 Ernie, I get a lot out of your posts, because in spite of the severity of your symptoms, you keep chugging right along - it gives me a better, more positive attitude. I want to thank you for that, and for being so open about what happens with you. It's been only a few months since I finally understood what's been wrong with me for so many years, and my starting place was on this board. The way everyone shares their lives and experiences so freely here is a great comfort, especially to those who are just learning about POTS and related issues. So please, keep talking - you help others, like me, so much. Quote Link to comment Share on other sites More sharing options...
corina Posted October 9, 2004 Report Share Posted October 9, 2004 Ernie,you are not boring anyone with your faintingstories. In fact I feel very sorry for you. I don't have this faintingproblems like you have, it must be very very frightening to possibly fall down all the time. I hope you don't hurt yourself having this. Although I don't care reading about your problems (that's what POTSfriends are for hey!) I would definately like it more when you could let us now your back at work. That's why I'm constantly trying new meds, to maybe find something that might get me my life back. Meanwhile I'm trying my very best to make life worth living for my family and me. Hope you're doing better now,Corina Quote Link to comment Share on other sites More sharing options...
Ernie Posted October 10, 2004 Author Report Share Posted October 10, 2004 I feel much better today. I went with my friends to see them playing bowling. They took good care of me because they carried my bags and watch over me. Everything went OK. Thanks for your support Corina, JLB, Blackwolf and Morgan. You make me see things differently.I still hope to improve some more. I am waiting to see a muscle specialist. I am suppose to be hospitalised for 5 days but I did not get the date yet. You know how slow things are in Canada! I have been waiting 5 weeks for the phone call. Every time the phone rings I hope it is the hospital. I never though I would be excited about going to an hospital. I used to be excited about going to Mexico or Europe!Have a nice day.Ernie Quote Link to comment Share on other sites More sharing options...
DawnA Posted October 11, 2004 Report Share Posted October 11, 2004 Ernie, I will be praying that your phone call is soon. I hope they can find something and be able to treat it, so you are not fainting so often. Maybe one day you sill be able to go to Mexico again. Take care!dawn a Quote Link to comment Share on other sites More sharing options...
opus88 Posted October 11, 2004 Report Share Posted October 11, 2004 Can you explain exactly what you mean and where you feel the adrenal gland pain? What's it like? I've often wondered if that isn't what I feel, but nobody seems to understand what I'm talking about! Quote Link to comment Share on other sites More sharing options...
Ernie Posted October 11, 2004 Author Report Share Posted October 11, 2004 Hi Opus,The adrenal pain is in my back where I have my bra strap. It is on each side of my spine. The pain feels like someone is overstretching a muscle. Before I had that pain only when I had an adrenaline rush but lately the adrenal pain was 24 hours a day. Since my acupuncture session 2 weeks ago the pain is gone.Ernie Quote Link to comment Share on other sites More sharing options...
Guest Julia59 Posted October 11, 2004 Report Share Posted October 11, 2004 Ernie,I don't pass out----but I still wanted to offer my support as I can't imagine how scarey it must be, especially when your alone and no one is there to help.I have only come close to fainting and each time I was alone...... Your posts don't bore me at all, I have found many of your posts to be very helpful----and supportive to many here on this forum---including me-- Keep hanging in there Ernie,Julie :0) Quote Link to comment Share on other sites More sharing options...
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