Another Specialist Who Gets It!!

[mjan]

Most of you do not know..but I am very COMPLEX!! And that is just my personality!! heheheee

Its hard to discuss your medical history as it so complex and most MDs did not want to know the WHOLE story.. ya know what I mean?

Well.... a few weeks ago..I was awakened with the INABILITY to swallow.. at all!! THis has happened a few other times..or it been a struggle but this time NOTHING would move when I tried to swallow. Ok.. so today I see the GI guy.. a great guy.. with a nice pleasant personality.. puts you at ease.. and LISTENS!! I always bring notes so I dont forget to mention important symptoms.. I try to keep them to his speciality.

BUT what really caught me off guard was ..he was writing down my issues and said.. you have an auotnomic dysfunction to me !! He said it a few times before it sunk in to ME that he knew what he was talking about.

He is going to do an ENDOSCOPIC exam and then implant this little device in your esophgus which is hooked onto you for 2 days and it accurately records how much acid reflux you have or dont have. HE'll also do 2 biopsies..one of the stomach.. one of the esophgus. He's not even sure I have ACID REFLUX as I hae no pain and it CAN be silent.. he is more concerned about esophagoitis I think its called. AND he never heard of anyone "forgetting" to swallow when I drink water. I take a sip.. and walk around then notice I never swallowed. Also its been hard to swallow without choking each and every time I eat.

YESSS I am taking the drugs even though he said it would only take 5 or less minutes. AND I may have to see an ENT doc to examine my larynix as that is a problem too.

BUT.. folks.. HE KNEW ABOUT AUTONOMIC DYSFUNCTION and how it could be related!!

Jan

[juliegee]

What a pleasant surprise! I hope you get to the bottom of things. Out of curiosity, do you take a beta blocker? I have a hard time swallowing when I do. It feels really slow....like I have to think about it. If so, might be an easy fix. My son with dysautonomia also has a tough time swallowing. As a little boy, he would get a mouthful of food, point to it with a panicked look in his eye, and spit it out. Weird.

Keep us posted on what you learn!

Julie

[erikainorlando]

Sometimes it is more difficult for me to swallow.....more of challenge. This is when I am otherwise feeling awful....out of curiosity, what is the problem with your larnyx?

Thanks,

Erika

[mjan]

What a pleasant surprise! I hope you get to the bottom of things. Out of curiosity, do you take a beta blocker? I have a hard time swallowing when I do. It feels really slow....like I have to think about it. If so, might be an easy fix. My son with dysautonomia also has a tough time swallowing. As a little boy, he would get a mouthful of food, point to it with a panicked look in his eye, and spit it out. Weird.

Keep us posted on what you learn!

Julie

Thanks Julie for your response. Boy.. get your child checked out..dont ya think? He should NOT be having a hard time swallowing. I just read about a lot of congenital problems leading later to esophagus disorders.

YES been on a beta blocker for years..finally the Autonomic doc has reduced it. As a result my BP has lowered. How did you learn its related?

Jan

[mjan]

Sometimes it is more difficult for me to swallow.....more of challenge. This is when I am otherwise feeling awful....out of curiosity, what is the problem with your larnyx?

Thanks,

Erika

Hi Erika

Well I have this mucous that seems to makes it difficult to swallow..sleep ..talk cough alot. The GI guy doesn't examine this exactly. He'll see the larynix but its not his specialty. So.. I may have to see an ENT guy. I have Sicca syndrome where I have extreme dry eyes..mouth and ears. It may be affecting the INSIDE of my throat now too.

Jan

[ramakentesh]

The swallowing thing is a new symptom for me. But its one thats becoming really annoying at times.

Some doctors believe that some forms of POTs are actually circulatory disorders rather than dysautonomia. Whereas faulty norepinephrine reuptake, parasympathetic withdrawal and peripheral autoimmune denervation are all autonomic dysfunctional forms of POTS.

[Nauthiz]

let me know what he says because this has been becoming a issue for me too. I have trouble swallowing, lots of extra saliva and mucous at times. Throat also feels very stiff and at times sore and painful. My throat feels so irritated it makes me afraid its just gonna close up!

[Broken_Shell]

Hi Jan,

What wonderful news! I am SO happy for you. Can I ask the name of the doctor and what clinic he is with? Thank you!

~ Michelle (Broken_Shell)

Edited June 18, 2009 by flop
Quotation removed, please use the "add reply" button at the bottom of the page

[mjan]

Hello my Dear...

His name is Woodsuk Park...he is Korean and although I will give anyone a chance and am NOT prejudice I worry about the language barrier. Well...his English was better than mine at times! He works out of the Racine All Saints (where he does the testing) and I saw him at the Wheaton Franciscan FRANKLIN hosp outpatient part. Like the sleep studdy doc they are VERY excited to find out what is wrong.. and will keep trying..rather than ignore you or make up somehthing. I was MOST impressed with his bedside manner and told him. He thanked me and said the feedback meant a lot to him. He even will refer me to an ENT guy if I need my larynix evaluated too.

How are yOU???

Jan

Edited June 18, 2009 by flop
Quotation removed, please use the "add reply" button at the bottom of the page

[ajw4790]

YAY! Wahoo! Happy for ya! Hope that he is able to continue to help you out!

[mjan]

YAY! Wahoo! Happy for ya! Hope that he is able to continue to help you out!

Thanks ajw4055...

He said his training was at the CLEVELAND clinic...isnt that pretty famous for autonomic testing/treatments??

Jan

[ajw4790]

Yeah, I have seen a couple drs at CC. The one wasn't as knowledgeable (didn't appear anyways), but the other one has many patients that post here on the board. Glad you found him!