iheartcats Posted June 16, 2009 Report Share Posted June 16, 2009 As many of you know, I've had to juggle a lot of medicines (with setbacks here and there) to find a decent mix.Anyway. It seems to get the 'best treatment' from my meds I have to somewhat self-manage them. I've got the 'ok' to do this with Midodrine (some days I need to take it twice, some days three times) and my EP says this is common.When I try a new medicine I'll often try a lower dose than prescribed and work my way up. Sometimes I come clean about this, sometimes not, but I do not like jumping into something full-strength right away. (I'm not talking about things like allergy medicines or antibiotics, I'm talking about POTS-related meds).Now I am back on Mestinon (was taking 2 X 60mg/day) and then tried the 180mg timed release which was pretty much an 'overdose' dose and I was terribly ill all day and twitching. Now I am taking 2 X 30mg/day for a week, working my way back to the 2 X 60mg/day that I was on...my EP said to 'get back on it' since it was helpful, but I'm doing it at my own pace.My family sometimes gets irritated I do this...but I know it's easier on my body to work my way back into my old dosage (or to ramp up a new medicine). Is this terribly bad? Quote Link to comment Share on other sites More sharing options...
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.