Jump to content

Anyone Hypothyroid?


Radha
 Share

Recommended Posts

for those of you who have been diagnosed with hypothyroidism, can you tell me what your TSH value was? i think mine is high but my doctor says its in

normal range, its 4.26 and i was just wondering how it compares with others.........i want to try armour thyroid but dont need more problems, thanks for any

input,

Radha

Edited by flop
Typo in title corrected
Link to comment
Share on other sites

Different doctors have differing opinions as to the "number" that they want your TSH to be. Was that the only test they did, or did they do a Free T4?

You are at the high-end of normal and may benefit from additional hormone, but be aware that POTS people are sensitive to any changes to anything, and my doctor always tends to go real easy when changing my dosing schedule, knowing that I overreact to everything. So, to sum up, some doctors may want your TSH to be a bit lower, whereas, some are uncomfortable changing anything when you are in the normal range, although at the high end.

There is no clear cut answer and you will have to discuss this with your doctor.

Best to you.

Edited by flop
Quotation removed, please use the "add reply" button at the bottom of the page
Link to comment
Share on other sites

i am, and i don't know what i was but the cardio at one point wouldn't allow my PC to go higher as this would make my fast heart beat ever faster.

i have to be careful not to take anything extra to cause my heart to beat extra fast. :unsure:

Link to comment
Share on other sites

i am, and i don't know what i was but the cardio at one point wouldn't allow my PC to go higher as this would make my fast heart beat ever faster.

i have to be careful not to take anything extra to cause my heart to beat extra fast. :unsure:

What's PC? Is that a medicine or a pulse?

Yes, we can overreact in the hormone department, and our pulse can go higher.

Link to comment
Share on other sites

There are a few different "standards" for TSH ... but most labs still are using ~5 as the upper limit. While many physicians respect that many of us do better at a 1 or a 2 when we are supplementing. I try and keep my TSH under 3, and my Doctor and I tweak my synthroid dose (actually Levoxyl in my case) if it seems to creep much higher.

Did you ask your Doctor about a smidge of thyroid med?

Link to comment
Share on other sites

thanks for all your replies, my T-3 is 2.6 and T-4 is .91, does that make any difference? i am thinking of just buying armour online without a prescription to see if it helps, i know that is not best but my doctor is very strict about normal values.

Radha

Link to comment
Share on other sites

Get a different doctor!! Sometimes endos are locked in, but you may find a primary care physician who is willing to try dosing with you.

Thryoid hormone ... unlike other meds ... has a REALLY REALLY LONG half life. It stays in your body for WEEKS! So even on a tiny dose ... your blood levels are building up ... higher and higher each day over time.

That's why it takes a full six weeks to establish a new dose level.

It is such a tricky and delicate balance ... that my PCP and I were dosing one .88 pill on even days of the month and one .1 pill on odd days of the month all last year, in order to keep me in my zone. My zone by the way changed yet again, and presently I had to back down to just .88 daily.

Thyroid effects SOOOOO many other hormones it would be so dangerous to try this on your own -- even if you did by overthecounter TSH blood tests to try and gauge your progress.

Please try a new Doctor instead of experimenting with thyroid meds ... they are too dangerous to mess up.

Link to comment
Share on other sites

do the test results for hashimotos change day to day then how do i know when to get blood drawn for most accurate results? if you

are not sure you have it and dont treat it does it keep getting worse? and is armour the same treatment for it? thanks for all your

replies.

Radha

Link to comment
Share on other sites

The Hashi antibodies won't be found all the time -- only when its active. BUT they are not transient, in that you won't have them high in the morning and not at all in the afternoon. It takes weeks (my sense) for the antibodies to die down with each Hashimoto episode.

But MomtoGiuliana is right in that the low thyroid could be producing high POTS activity so its hard to discern between the two based only on how you are feeling.

My hashi antibodies tend to show up all the time we test for them. However my PCP and I don't tend to dose my levoxyl based on the antibodies like that article suggests. Though I may ask him to think about that possiblity with me because waiting out each Hashi attack is really hard.

Left untreated, as some Doctors suggest, the scar tissue from the repeated attacks on the thyroid gland form the antibodies the body is making in Hashi, will slowly lead to hypothyroidism. Because it is a slow progression, some endos figure ... we'll just wait until the TSH is really high before we'll treat. What they don't grasp is that each of the Hashi attacks are really hard on the patient in terms of being highly symptomatic ...

Small doses of thyroid, to only curb the TSH from rising, prevents hypothyroidism ... but doesn't quell the Hashi from flaring. Its only when you get those TSH numbers way way down ... to the point your body no longer needs to produce thyroxyn on its own, that the Hashi doesn't act up. The theory here is that ... if the body isn't producing its own thyroid hormone ... the body won't make antibodies to kill off the thyroid gland. It seems the chemical compounds in synthetic thyroid don't trigger the same call to make antibodies to attack the gland.

That said, there are some hashi people who DON'T USE ARMOUR because it is too close to an organic compound and in their case the Hashi still gets activated and produces the anti-thyroid antibodies. In these cases the synthetic compounds -- synthroid, levoxyl -- are preferred.

Its a can of worms. Sorry there are no easy answers. I've been searching for one myself for years as you can gather by the depth and breadth of my response.

Link to comment
Share on other sites

thanks so much for your explanation, it sounds like the blood test is not going to help me since i dont know when the right time is, if

i am having a hashi episode or not and i cannot keep getting blood drawn, not that my doc would agree anyway! maybe i wlll just try the

armour if my doc agrees and see if it helps, thanks again,

radha

Link to comment
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

 Share

×
×
  • Create New...