arizona girl Posted May 13, 2009 Report Share Posted May 13, 2009 So, I'm not sure what to think. Last week I wrote him a note with a copy of my recent records from my cardio, saying my cardiologist wanted my records from him. That I had, had a positive TTT, and an unexplained colon rupture, that small fiber neuropathy can be a part of the dysautonomia and that I had frequent pins and needles in my arms and legs, and my skin was frequently cold to the touch. Thanked him for assisting my cardiologist and said if he had anything to offer that would get me functional again, it would be appreciated.I didn't ask for an appointment and really didn't expect to hear from him. He after all was the one two years ago, that wasn't confident on Dr Yan Go of UCLAs findings that there appeared to be some kind of dysautonomia. He said there where no doctors in arizona and I should go to mayo. Like he wouldn't believe Mayo, but not UCLA. His doctor's notes on me say I appear to have anxiety!!!! I also said something about that in the note in a nice way, that anxiety is often misdiagnosed in pots. So, I really didn't expect to hear from him.So I get this call from his office yesterday saying they want to do an emg, this week. No reason why! No appt to talk with me first.So is this an answer to prayers? Like our friend here that got appt at cleveland clinic out of the blue! Will this test help me figure out anything? I think I had an emg years ago after a car accident herniated my L5/S1, I remember it being very painful to me, but that the test came back normal, though I think I had a hyper painful response to it. So, if it comes back normal, then what???It is so interesting how once you have had a positive tilt table, all of the sudden you are taken more seriously. Like that test opens doors that wouldn't open before, even though all symptoms pointed in dysautonomia's direction.Well I'm cautiously optomistic, any advise to you all have that will help with the test or question I might pose to the doc, would be great!! The appt is tommorrow (thurs) at 2:30. Quote Link to comment Share on other sites More sharing options...
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