Chrissy Posted May 8, 2009 Report Share Posted May 8, 2009 I often am unable to get my words out of my mouth when talking even when I know exactly what I'm trying to say. I do alot of "and ums" or "likes", but what's worse is now I'm to a point where I blank completely and stand there try to find the words I'm trying to say, looking like an idiot or uneducated. I've always had a business mind and interest in business ventures, but its kind of hard to do when I can't even talk right. It's one thing for my body to give up on me or even that I have to do my thinking laying down. But I feel like I'm losing my mind completely. I'd hate to have to advertise my medical issues to everyone I meet in case I try to talk to them and look like an idiot. Is this due to the blood draining out of the head with POTS or do I need to go back to the neurologist and get reevaluated. I just had a neuropsych test in Nov. but I wasn't experiencing this at least not this bad. Quote Link to comment Share on other sites More sharing options...
potsgirl Posted May 8, 2009 Report Share Posted May 8, 2009 Hi Chrissy~Please don't feel like at idiot. I think a lot of us have problems with this. When I'm really out of it, I can be in the middle of a discussion and just blank about what we were talking about. Honestly, I will have no clue whatsoever. I have to ask the other person what we were discussing, and it's hard not to feel pretty stupid when you have to do that. Sometimes when I'm having problems finding words or remembering the topic du jour, I need to just relax and let my mind drift and usually I'll remember. Just not as quickly as I want to!Good luck and know you're not alone!Cheers,Jana Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted May 8, 2009 Report Share Posted May 8, 2009 This happens to me too--both attention and memory problems I didn't used to have. I chalk it up to POTS (perhaps becoming a mom too). I think I am too young still for dementia to be setting in.Sleep is the only thing that really helps me. Quote Link to comment Share on other sites More sharing options...
samannran Posted May 9, 2009 Report Share Posted May 9, 2009 This happens to me, too. If I'm on my feet for very long, it's like my brain is starving for oxygen. Of course, so much blood pools in my legs, I'm sure my brain is starving for oxygen. I agree that it's very embarassing. I'm a teacher, and I really struggle with the loss of words. Quote Link to comment Share on other sites More sharing options...
jjb Posted May 10, 2009 Report Share Posted May 10, 2009 I get tis a lot. Seems as though I have come across info on the cholinergic nerves and cognitive issues.Have you been tested fr small fiber neuropathy? Quote Link to comment Share on other sites More sharing options...
janiedelite Posted May 11, 2009 Report Share Posted May 11, 2009 If you're an idiot, then so am I... even though I put myself through nursing school with a 4.0 GPA, worked in a critical care setting for 7 years, and was teaching new nurses on our unit. Now I know I would be unsafe in any medical setting, except as a patient! Just yesterday I was in a bad crash but I didn't want to miss out on a family mother's day gathering. I had bad tremors and kept dropping things, tripping over my own feet and my tongue felt so thick I kept stuttering! I definitely think more clearly when I'm lying down but it's often just marginally better.I have small fiber neuropathy too but it seems to me that the overwhelming fatigue and brain fog go hand in hand. Quote Link to comment Share on other sites More sharing options...
tinkerbella Posted May 11, 2009 Report Share Posted May 11, 2009 my whole life I've had a problem with my words fist saying them and if I said them wrong once i would never say them ever again. after that or more recently I can't find my words any more so I'm constantly playing charades with people. Now I just tell people right up front that I have a neuro disorder and can't find my words and I may start playing charades with so you please bear with me. we laugh and let the charades begin. Quote Link to comment Share on other sites More sharing options...
vemee Posted May 11, 2009 Report Share Posted May 11, 2009 not only looking lot an idiot but treated like one. Happens when standing or sitting for a long time. I have had it for decades but the worst was when I was a firefighter trying to give instructions to responding trucks on where to set up, I sound like a total fool and it really zapped my confidence. Some where on this site and you will probably have to search here and on google there is an interview with a doctor from Cleveland Clinic where he addresses this problem; it seems to be a common pots problem. Talk about looking like an idiot I had to edit this post because I left out half of a sentence . The sad thing is I belong to mensa but you would never know it. Quote Link to comment Share on other sites More sharing options...
rymac Posted May 12, 2009 Report Share Posted May 12, 2009 I can relate. Talk about a confidence killer. I have been telling some people I have a memory problem. Names and numbers are the worst. I try to read and do a few soduoko puzzles which are hard for me. Sometimes I'm very calm acting but the wrong words are coming out. I was trying to chat with someone online the other day, something I never do, and my hands were shaking so I confessed my anxiety and that ended that chat. Hang in there Chrissy. Quote Link to comment Share on other sites More sharing options...
tinkerbella Posted May 12, 2009 Report Share Posted May 12, 2009 when i was at my neuro last she gave me a memory test mind you i just was on midodrine at evening and bedtime and it says never lay down on the label. I was a walking idiot i was convinced it was 2008 two weeks before and it scared the crap out of me. I scored a 28 out of 30. I was ticked off and my reflexes were a little slow. no kidding, she asking me things and telling me to remember things that she'll ask later all while asking me to spell words backwards. i don't do those things. I have a quick sense of humor, know facts about all kinds of thing but that was sheer tourture. after she said that's not too bad, when I read the dr notes it sounds like I'm worse. i guess she could have just told me wee all like this and i would have felt better. I'm not taking that stuff anymore because of that now. now I'm just a regular idiot! Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted May 12, 2009 Report Share Posted May 12, 2009 various studies have demonstrated a reduction in carotid artery blood flow in pots when standing that ranges from 44%-60% so its no wonder your brain goes into pots fog... Quote Link to comment Share on other sites More sharing options...
Lgamez3 Posted May 13, 2009 Report Share Posted May 13, 2009 when i was at my neuro last she gave me a memory test mind you i just was on midodrine at evening and bedtime and it says never lay down on the label. I was a walking idiot i was convinced it was 2008 two weeks before and it scared the crap out of me. I scored a 28 out of 30. I was ticked off and my reflexes were a little slow. no kidding, she asking me things and telling me to remember things that she'll ask later all while asking me to spell words backwards. i don't do those things. I have a quick sense of humor, know facts about all kinds of thing but that was sheer tourture. after she said that's not too bad, when I read the dr notes it sounds like I'm worse. i guess she could have just told me wee all like this and i would have felt better. I'm not taking that stuff anymore because of that now. now I'm just a regular idiot! I am starting Midodrine today....its my 5th med that I am trying... my Dr is having me take it 3x's a day....are you saying it made your brain fog worse?????? Thats all I need! I already feel like an idiot most of the time.....this is so frustratingLaura Quote Link to comment Share on other sites More sharing options...
Katja Posted May 13, 2009 Report Share Posted May 13, 2009 Both Midodrine and Florinef improved my brain fog - it was actually the first thing I noticed on the Florinef. Wearing compression stockings also improved it noticeably. Quote Link to comment Share on other sites More sharing options...
tinkerbella Posted May 13, 2009 Report Share Posted May 13, 2009 made mine worse and i decided with my doctor for now, i will drink or eat high salt foods/drinks at the appropriate times of day/night. i'm very sensitive to medsand suddenly i don't know what year it was and the newest med was midodrine, so that's the med i stop. we always start meds slowly one at a time to see which one may be causing a problem.remember, everyone is different and your best judge is to ask someone else if they notice a difference. I was rudely awakened when I was told and I made sure i was better after i stopped. i was also taking this med at night also, when it says never lie down for so many hours and i was the 1 percent that had to.maybe that had something to do with it.i hope and pray for you though that it helps you. Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted May 14, 2009 Report Share Posted May 14, 2009 indeed - POTS seems to have very different causes in patients - and some may be caused by the opposite of others - therefore what works for one or many may not work at all for others. Quote Link to comment Share on other sites More sharing options...
Shimoda Posted May 26, 2009 Report Share Posted May 26, 2009 YES. YES. YES.I absolutely HATE this. It's awful - I feel like an idiot too... It's not helpful when you're trying to hit on the ladies, and you sound like a retard...arggg Quote Link to comment Share on other sites More sharing options...
tinkerbella Posted May 26, 2009 Report Share Posted May 26, 2009 YES. YES. YES.I absolutely HATE this. It's awful - I feel like an idiot too... It's not helpful when you're trying to hit on the ladies, and you sound like a retard...arggghas anyone read that a sleep apena machine is suppose to help our brains from getting worse? i read an article and can't find it for my sleep doc as i did not have sleep apena but struggle with nightly sleep.i pray there is an answer for preserving our minds. good luck shimoda, just have in advance what you want to say for an ice breaker. i have to stay away from words i can't pronounce and never could, luckily i'm funny(good sense of humor). cash in on anything that makes you interesting. people don't reject me when i tell the truth, in fact we have more fun as I'm laughing at myself.never let that hold you back from trying tp meet some one. count your blessings that your able to get out and meet them. these day most i meet are on line or in the hospital. also think about what you're going to say, then speak. BellaMia~ Quote Link to comment Share on other sites More sharing options...
Shimoda Posted May 26, 2009 Report Share Posted May 26, 2009 has anyone read that a sleep apena machine is suppose to help our brains from getting worse? i read an article and can't find it for my sleep doc as i did not have sleep apena but struggle with nightly sleep.i pray there is an answer for preserving our minds. good luck shimoda, just have in advance what you want to say for an ice breaker. i have to stay away from words i can't pronounce and never could, luckily i'm funny(good sense of humor). cash in on anything that makes you interesting. people don't reject me when i tell the truth, in fact we have more fun as I'm laughing at myself.never let that hold you back from trying tp meet some one. count your blessings that your able to get out and meet them. these day most i meet are on line or in the hospital. also think about what you're going to say, then speak. BellaMia~Heh, my mind should be kept in like a glass jar or something until they find an answer.On the social thing, I'm trying my best. I am trying to think before I speak now, lol. Thanks for the advice.Regards, Shim Quote Link to comment Share on other sites More sharing options...
tinkerbella Posted May 26, 2009 Report Share Posted May 26, 2009 LOL! Maybe we'll meet on a shelf in a glass jar one day as my brain should be kept also. Till then ENJOY! BellaMia~ Quote Link to comment Share on other sites More sharing options...
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