UtahApoc Posted April 3, 2009 Report Share Posted April 3, 2009 I know that when I first got diagnosed I was told that men are even more rare to have dys. I am curious as to who, and how many on this forums are a guy like myself. Was just thinking that we can chat some since we may have some differences then the nice ladies here do. Quote Link to comment Share on other sites More sharing options...
Kitsakatsa Posted April 4, 2009 Report Share Posted April 4, 2009 Not a guy, but just wanted to say Hi from Salt Lake!Kits Quote Link to comment Share on other sites More sharing options...
juliegee Posted April 4, 2009 Report Share Posted April 4, 2009 Uh Ho- another female. Sorry I'm actually here on behalf of my son. He's 16 y/o now and was DXed with dysautonmia when he was 12 y/o. He was so incredibly sick that he missed an entire year of school. With lots of meds and lifestyle changes, he's back at school full-time. He's an avid bicycler and guitar player. I'd like to hear from more guys too. Julie Quote Link to comment Share on other sites More sharing options...
Nauthiz Posted April 4, 2009 Report Share Posted April 4, 2009 I know that when I first got diagnosed I was told that men are even more rare to have dys. I am curious as to who, and how many on this forums are a guy like myself. Was just thinking that we can chat some since we may have some differences then the nice ladies here do.guy here, 22 male Quote Link to comment Share on other sites More sharing options...
anna Posted April 4, 2009 Report Share Posted April 4, 2009 I know that when I first got diagnosed I was told that men are even more rare to have dys. I am curious as to who, and how many on this forums are a guy like myself. Was just thinking that we can chat some since we may have some differences then the nice ladies here do.Hi, my twin 14 year old boys have dysautonmia, but not having to deal with male dys issues at the mo, there are more Dysautonmia guys over on the uk EDS site, they might like a chat if you have EDS as part of your diagnosis, it could be worth a try.Anna Quote Link to comment Share on other sites More sharing options...
rymac Posted April 4, 2009 Report Share Posted April 4, 2009 Male 37 Quote Link to comment Share on other sites More sharing options...
morgan617 Posted April 4, 2009 Report Share Posted April 4, 2009 Son, 27 might like to have guys to chat with. morgan Quote Link to comment Share on other sites More sharing options...
ken870 Posted April 4, 2009 Report Share Posted April 4, 2009 male,46 yrs old and had pots since i was 40 years old Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted April 13, 2009 Report Share Posted April 13, 2009 Male aged 31 - got mild symptoms when i was young, then strange migraine visual stuff and then a sudden onset when i was 26. Came on at the same time as a very mild case of Ankylosing Spondalytis (arthritis of the back basically).I dont get blood pooling in the legs or hands - infact i seem to be an overcontstrictor. Quote Link to comment Share on other sites More sharing options...
vemee Posted April 13, 2009 Report Share Posted April 13, 2009 Hello, I am 52 and can trace the symptoms back to my teen years. Symptoms went from manageable to severe 5 years ago. Quote Link to comment Share on other sites More sharing options...
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