Stace915 Posted March 30, 2009 Report Share Posted March 30, 2009 I have an appointment with my local electro-physiologist today but the last 3-4 weeks (I have not changed anything, no meds etc) my bp which has always been really low, has all of the sudden spiked up!In the past with all of my medication I was lucky if I ran 100/55 but most times I was in the 90's and without the meds, forget it I couldn't even stand.. but now even in the morning before I take my meds my bp is anywhere between 130-145 over 67-115!!! This morning I took it right after I got out of bed, I figured I would check it before taking all my pills and it was 145/115!! I couldn't believe it, I have never in my life seen numbers like that, however I am not feeling better I think it actually makes me feel worse.I called the doctors office to see what I should do and they said to take my morning pills as usual but to check my bp again before I start taking my midrodrine (I generally start that every day at 1pm and take it every 3 hours) and that if my bottom number is down I should take the midrodrine and they will see me this afternoon for my appointment.Has anyone else had this happen? Even before my diagnosis and as a kid I always ran very low and I am little freaked out that all of the sudden with no changes it is so high. I always assumed that if my bp was ever high I would feel a lot better but that is definitely not the case.Does POTs go through changes like this?? Does this mean I am moving forwards or backwards in my road to recovery?Help!?? Quote Link to comment Share on other sites More sharing options...
lotsicker Posted March 30, 2009 Report Share Posted March 30, 2009 Hi,I am new to the board but, I have seen a few high numbers when I have taken my BP. For me it was pushing myself to the point of complete exhaustion. (4 kids and to many activities) At those points my BP was high and I had to sit down before I ended up in the hospital! I think my heart just couldn't keep up and caused the high BP. This only happened twice though. Its possible you need bed rest for a while to get your body adjustments closer to normal. I would also see if you can see your dr so they can document the change. Quote Link to comment Share on other sites More sharing options...
all4family Posted March 30, 2009 Report Share Posted March 30, 2009 HiOne of my first symptoms was waking with numbness, and a high blood pressure of 186/112. Being a person who's top blood pressure was rarely over 100 this was extreme for me. Since that time I have bouts of very high blood pressure, and very low blood pressure. Neither feels too good! It is only when I am somewhere in between that I feel worth a darn. I did read an article somewhere that said that because the ANS is dysfunctioning this can cause extreme abnormalities in either direction. Suzy Quote Link to comment Share on other sites More sharing options...
ajw4790 Posted March 30, 2009 Report Share Posted March 30, 2009 Hi,I am not sure I have a great answer... I know that the weather here has been messing with the way I feel. Also, hormones could maybe play a role? I tend to always run right around 120/80 or a smidge higher, so I don't have a lot of insight. I do get a lot of low BP reading when starting new meds, but you said you haven't changed anything like that. Has your diet or fluid consumption changed?Hope the dr. appmt goes well! Quote Link to comment Share on other sites More sharing options...
Stace915 Posted March 30, 2009 Author Report Share Posted March 30, 2009 Thanks for all of your responses, I have been trying to eat healthier the last few weeks because I am packing on some unwanted pounds but I don't think that would affect my bp. Maybe it could? Besides that everything is the same, meds, fluids, day to day activity etc...Hopefully the doctor has an idea! Quote Link to comment Share on other sites More sharing options...
iheartcats Posted March 30, 2009 Report Share Posted March 30, 2009 Thanks for all of your responses, I have been trying to eat healthier the last few weeks because I am packing on some unwanted pounds but I don't think that would affect my bp. Maybe it could? Besides that everything is the same, meds, fluids, day to day activity etc...Hopefully the doctor has an idea!I know our ANS system is crazy and one never knows. But in general I know being overweight can raise BP. But that's in the normal population.I myself want to drop a few pounds and April 1 is my kick-off date. I wish you luck with that and your BP issue. Let us know if it stabilizes.When I'm tired/hot/stressed mine goes higher than normal, but mine usually ranges from 110/70 to 140/95. My EP said to not worrk about anything 140/95 down to 90/60. So I try not to. Quote Link to comment Share on other sites More sharing options...
Chrissy Posted March 30, 2009 Report Share Posted March 30, 2009 I have this problem too. But I have an undetermined endocrine issue that is causing weight gain and overshadowing my POTS. I still feel severely POTSEY, but my b/p is in the prehypertensive or the stage 1 hypertensive range. My doctor said not to change anything. I was even told to continue the high salt intake. Not sure if this helps. Quote Link to comment Share on other sites More sharing options...
pat57 Posted March 31, 2009 Report Share Posted March 31, 2009 Did you have any changes with your period? This can effect blood volume. Quote Link to comment Share on other sites More sharing options...
Stace915 Posted March 31, 2009 Author Report Share Posted March 31, 2009 No changes with my period, I did see the EP yesterday and he had possible good news. He thinks there is a possibility that I do not need as much medication anymore. Besides the crazy change in BP and HR I have also put on about 6-7 pounds in the last six months, and my diet hasn't changed, I haven't been able to exercise in years so that hasn't changed and I figured age was just creeping up on me. I have always been thin and never even considered the weight gain was POTS related...So he thinks that I may not need to be on the florinef anymore and can possibly cut down on the cymbalta as well. He said if I had too much florinef in my system and more than my body needs that I would gain more water weight than I did previously on the medication, and that it would cause my bp and hr both to spike. Today was my first day of cutting the dose in half and I have to monitor all my numbers closely and check in with his nurse weekly and depending on the results he will try to get me off of the florinef completely and then maybe try to reduce some other meds.I HOPE this is the case, I have been waiting, and waiting, and still waiting for the day that something changed with my health in a positive way and reducing meds would be fantastic!Keep your fingers crossed that the med reduction works and that I am not just starting to get hypertension and get fat because I am getting closer to 30 lol. Quote Link to comment Share on other sites More sharing options...
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