summer Posted January 22, 2009 Report Share Posted January 22, 2009 Can anyone tell me what nerve conduction studies are? Recently someone suggested to me that I should have these done. Just wondering if there is anything to be gained by having them. What have your experiences been? Quote Link to comment Share on other sites More sharing options...
janiedelite Posted January 22, 2009 Report Share Posted January 22, 2009 I had the large fiber nerve conduction test. The neurologist touched a metal probe to the most distal ends of my large nerves (ulnar, radial, etc.) to see if there was any nerve damage. There wasn't. I think this test is most useful if you are noticing muscle weakness. Quote Link to comment Share on other sites More sharing options...
Jordan5815 Posted January 22, 2009 Report Share Posted January 22, 2009 It's no big deal, you just feel a little zap through a straight line in your body it's like a little shock of static electricty =p Quote Link to comment Share on other sites More sharing options...
dsdmom Posted January 22, 2009 Report Share Posted January 22, 2009 This was actually really painful for me. The person doing the test says it varies by person - some could fall asleep during it and others are in tears. I was closer to being in tears... Quote Link to comment Share on other sites More sharing options...
lalalisa Posted January 22, 2009 Report Share Posted January 22, 2009 I had one of these done when I was seeing a neurologist and I was still being diagnosed. I didn't show any nerve damage...I think just a touch of carpal tunnel in my arms. The sensation is really weird but not too painful or uncomfortable.Blessings,Lisa Quote Link to comment Share on other sites More sharing options...
momofsara Posted January 22, 2009 Report Share Posted January 22, 2009 Sara's nerve conduction test showed out of 11 points tested------- 1-marked; 1-severe; 9-very severe.. Good luck with your test, if you decide to have it done. Susan Quote Link to comment Share on other sites More sharing options...
flop Posted January 23, 2009 Report Share Posted January 23, 2009 I had this done (results were normal), I would describe the sensation as like being flicked with an elastic band (sharp but quick). I also had a test done where they put a cold probe on my skin and then heated it up, I had to tell them as soon as I felt it get warm (that test was normal too).Flop Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted January 23, 2009 Report Share Posted January 23, 2009 I had something similar - testing nerve firing rate supine and then at various tilts during tilt table test - all POTS patients tested had very high nerve firing rates when tilted. Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted January 23, 2009 Report Share Posted January 23, 2009 It depends on what type of study you are having. The EMG has a needle part and a zapping part. When I had both parts of the EMG, I cried during and after! It was extremely painful. They did find thoracic outlet syndrome though. The next time I had a study it was only the zapping/electric part and it did not hurt. best wishes,tearose Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted January 24, 2009 Report Share Posted January 24, 2009 I have had this done multiple times. It's uncomfortable for me, but not painful enough for me to avoid the tests. I do have nerve damage--mine show slower conduction in several areas, particularly in my arms/hands.Nina Quote Link to comment Share on other sites More sharing options...
summer Posted January 24, 2009 Author Report Share Posted January 24, 2009 Thank you all for your replies. It's interesting to hear the differences in how all of you experienced this testing. Just wondering as well, if any nerve damage was found, did it effect your treatment plan or your diagnosis? Was the nerve damage thought to be the cause of your POTS/dysautonomia?Thanks so much for your help!Summer Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted January 24, 2009 Report Share Posted January 24, 2009 My nerve damage has nothing directly to do with my dysautonomia. Mine was from the nerves having pressure on them at the points where the nerves come out of the spinal column. I needed surgery to clean out the scar tissues that were pressing on the nerves and also to stabilize my spine. I have a collagen defect which is similar to EDS.Nina Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted January 24, 2009 Report Share Posted January 24, 2009 My nerve study had nothing to do with my dysautonomia. It was related to lymphedema issues and thoractic outlet syndrome.tearose Quote Link to comment Share on other sites More sharing options...
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