firewatcher Posted January 16, 2009 Report Share Posted January 16, 2009 Saw the big-shot neuro-opthamologist today, she did some tests, looked at my MRIs and labwork and concluded that it is NOT MG! Whew!She said that because of my career (artist) I have early presbyopia. She also said that the ANS depressants (klonopin) would make it worse, and if I could switch to something else to control the headache, my eyesight should improve. Anyone got any ideas on a new headache med? My neuro wants me to try Lyrica. Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted January 16, 2009 Report Share Posted January 16, 2009 Hooray! ?Well at least you don't have any new disease progression to deal with.I celebrate with you.I have no med sugesstions, just joy in sharing your news!best regards,tearose Quote Link to comment Share on other sites More sharing options...
iheartcats Posted January 16, 2009 Report Share Posted January 16, 2009 Your threat made me laugh. Congrats on just being old! I'm looking forward to trying Cymbalta if Grubb agrees...seems to help a chunk of folk, but I don't see him for a while yet. But that's the only drug I've really read up on lately.As for headaches...Lyrica was approved for CFS in the States. You keep hearing how POTS and CFS have overlapping symptoms so maybe it's worth a try. You can read up on the side effects, etc first. Quote Link to comment Share on other sites More sharing options...
janiedelite Posted January 16, 2009 Report Share Posted January 16, 2009 Congratulations! Isn't it great to have a "normal" problem now and then? I have been on Lyrica and Neurontin at different times. The lyrica worked much better than neurontin at controlling my pains and headaches. I even had more energy! It is very expensive (my mom pays cash for hers and it's $100 a week). I had to go off of it because it made me even more constipated than normal . I also gained 6 pounds in the 2 weeks I was taking it. These side effects I had were not unusual and were listed in the pamphlet. But my mom takes it with no problems at all, except that she was a little foggy-headed when she first was titrating up her dose. Lyrica also helped me to sleep more soundly.Take care, Janie Quote Link to comment Share on other sites More sharing options...
Ernie Posted January 16, 2009 Report Share Posted January 16, 2009 Hi,That's good news not having MG.I tried different meds for migraines: Topomax, Axert, Epival. Quote Link to comment Share on other sites More sharing options...
mkoven Posted January 16, 2009 Report Share Posted January 16, 2009 Good news! I'm still shopping for a migraine preventive. I've just started norvasc. If it's going to work, it won't be immediate, as I had a whopper migraine this week. Quote Link to comment Share on other sites More sharing options...
momofsara Posted January 17, 2009 Report Share Posted January 17, 2009 Congratulations on not having MG. I am very happy for you. About the Lyrica, I take it for rheumatoid arthritis, it does help with the pain, but I will warn you, it has made me gain weight. It may be a worthwhile trade-off for you however. Best to you, and congrats again.......Susan Quote Link to comment Share on other sites More sharing options...
juliegee Posted January 17, 2009 Report Share Posted January 17, 2009 Yeah!!!!!! Quote Link to comment Share on other sites More sharing options...
dawn Posted January 17, 2009 Report Share Posted January 17, 2009 Do you take an aspirin daily?I know several people who had a neurologist that suggested daily caffiene and anaspirin for their migraines and they had great success.Dawn Quote Link to comment Share on other sites More sharing options...
firewatcher Posted January 17, 2009 Author Report Share Posted January 17, 2009 I wish this headache was only a migraine! My migraines are debilitating, but they do respond to medication and only last a day or two (granted I want to die when I have one, but somewhere my brain tells me it will be over sometime.) With my migraines I get extreme photophobia, noise/odor/touch sensitivity, and nausea. This headache is daily, unilateral and NEVER goes away completely! Klonopin helps, some of the stronger benzo's help, but no one has found a cause! It does not respond to any of the migraine meds, I've tried a lot of them! I've tried calcium channel blockers--no help. I don't want to take the Klonopin, but is seems to be the only thing that works. I can spike/induce the headache by bending over/exertion/sex/strong emotion/coughing...so I try not to do all but one of those things Quote Link to comment Share on other sites More sharing options...
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