hollie Posted November 3, 2008 Report Share Posted November 3, 2008 I've seen in so many posts where some of you are figuring out (or trying to anyway) the onset of your POTS or causes of it. Is that really important? My docs have NEVER even talked about it. Should I be trying to figure it out? Will it help with symptom? Any thoughts on this? I would love to know how and why it all started, but have never pushed the subject because I didn't think it mattered. Does it make a difference?Thanks for your thoughts!!Hollie Quote Link to comment Share on other sites More sharing options...
Ernie Posted November 3, 2008 Report Share Posted November 3, 2008 Hi,It makes a difference if it's not genetic. If it's a virus or accident you may get much improvement. Quote Link to comment Share on other sites More sharing options...
MelissaCrystal Posted November 4, 2008 Report Share Posted November 4, 2008 None of my doctors are too interested in looking for the cause because some of them don't realize how many things can cause POTS. There are tons of curable causes for POTS and I want to make sure mine isn't reversible before I start covering up the evidence with treatments. Deficiencies can cause POTS, Adrenal issues can cause it, all kinds of stuff that is directly treatable (rather than treating the symptoms) and curable with surgery or corrections. I want to make sure I have no options before I start treating the symptoms. My docs are more interested in doing it the easy way though. Quote Link to comment Share on other sites More sharing options...
hollie Posted November 4, 2008 Author Report Share Posted November 4, 2008 That makes sence. How do I go about trying to figure out the cause? I've done a little research, but am unable to determine anything on my own. I'm affraid that my docs wouldn't really care to help me find out either. Any good sites out there to help???Hollie Quote Link to comment Share on other sites More sharing options...
flop Posted November 5, 2008 Report Share Posted November 5, 2008 A good place to start reading is the main DINET website particularly the sections on Causes, Detection and Mechanisms.It is also helpful to know what type of POTS you have (not easy to work out!!). Blair Grubb's book "The Fainting Phenomenon: Why poeple faint and what to do about it" has a good chapter on POTS and info about the sub-types which can help guide which meds may be most helpful. The book has been written for normal people to read not for doctors so it does explain things about the ANS and POTS.Flop Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted November 5, 2008 Report Share Posted November 5, 2008 I only found out because i got free medical treatment for being involved in the study on NET gene hypermethylation. They found that i basically had no NET - which means that norepinephrine doesnt get taken up properly - since norepinephrine is a vasoconstrictor im not sure how this results in POTS but apparently it does. Quote Link to comment Share on other sites More sharing options...
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