Jump to content
Search In
  • More options...
Find results that contain...
Find results in...
Sign in to follow this  
cbhowell

Can you have POTS and not know it?

Recommended Posts

Is it possible for someone to have a partial/slight case of POTS their entire life and not know it? I know that most on this forum have full blown POTS, but could someone have a small case of it? Just curious....Thanks!

Share this post


Link to post
Share on other sites

I would think so, only because there are so many patients who have experienced mild symptoms leading up to the full blown POTS. Myself included...there are so many levels of illness, you know? Lots of people with dysautonomia lead normal lives, while others are confined to their homes. It's such a wide range.

Share this post


Link to post
Share on other sites

Agree completely with ethansmom. The condition manifests itself at many different intensities--even within one person over time. My POTS specialist believes it is a more common condition than currently accepted, just that in many people it is at a mild enough level that they are not generally affected and certainly not disabled by it.

He often presents information on POTS to doctors within the region. He told me that every time he gives a talk, at least 2 doctors approach him afterwards and tell me that they think THEY have it! How crazy is that?!

Katherine

Share this post


Link to post
Share on other sites

i think most of us have had some symptoms our whole lives when you think back. some just never progress to the severe stages. i think it can be very mild or severely disabling, the whole tamale. so yea, i do think so. morgan

Share this post


Link to post
Share on other sites
Guest veryblue

I know for a fact that I have never even come close to having any POTS symptoms at all...I was the hyper kid and young adult up until the hour POTS or whatever it is I have hit me! The only time I remember being dizzy was when I have the flu and a couple times when I went through my aneroxic days...but those have a reason behind them. I never really tested my heart rate before but I know I played tons of sports ( go back and check out the exercise tolerance question) and you can see that I was a spaz...never short of breath or winded...which I definitally would have been if I had a high heart rate! So this is way I dont really think I have POTS.

Share this post


Link to post
Share on other sites

Yes, you can have POTS for a very long time without knowing it or even considering you have a diagnosable condition.

By the way, this term "full blown pots" -- where does it come from? ... I've never heard any physician use that term or read it in any of the medical articles I've seen. I have a feeling people use it to mean "the time when they felt at their worst" (and maybe then sought a diagnosis or medical care) ... and that can mean different things to different people too. One person may be able to work full time and still be at their personal worst; another person can't get out of bed without passing out. Everyone's experience with this thing is unique!

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Sign in to follow this  

×
×
  • Create New...