cbhowell Posted September 1, 2004 Report Share Posted September 1, 2004 Is it possible for someone to have a partial/slight case of POTS their entire life and not know it? I know that most on this forum have full blown POTS, but could someone have a small case of it? Just curious....Thanks! Quote Link to comment Share on other sites More sharing options...
ethansmom Posted September 1, 2004 Report Share Posted September 1, 2004 I would think so, only because there are so many patients who have experienced mild symptoms leading up to the full blown POTS. Myself included...there are so many levels of illness, you know? Lots of people with dysautonomia lead normal lives, while others are confined to their homes. It's such a wide range. Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted September 1, 2004 Report Share Posted September 1, 2004 Agree completely with ethansmom. The condition manifests itself at many different intensities--even within one person over time. My POTS specialist believes it is a more common condition than currently accepted, just that in many people it is at a mild enough level that they are not generally affected and certainly not disabled by it.He often presents information on POTS to doctors within the region. He told me that every time he gives a talk, at least 2 doctors approach him afterwards and tell me that they think THEY have it! How crazy is that?!Katherine Quote Link to comment Share on other sites More sharing options...
morgan617 Posted September 1, 2004 Report Share Posted September 1, 2004 i think most of us have had some symptoms our whole lives when you think back. some just never progress to the severe stages. i think it can be very mild or severely disabling, the whole tamale. so yea, i do think so. morgan Quote Link to comment Share on other sites More sharing options...
Guest veryblue Posted September 1, 2004 Report Share Posted September 1, 2004 I know for a fact that I have never even come close to having any POTS symptoms at all...I was the hyper kid and young adult up until the hour POTS or whatever it is I have hit me! The only time I remember being dizzy was when I have the flu and a couple times when I went through my aneroxic days...but those have a reason behind them. I never really tested my heart rate before but I know I played tons of sports ( go back and check out the exercise tolerance question) and you can see that I was a spaz...never short of breath or winded...which I definitally would have been if I had a high heart rate! So this is way I dont really think I have POTS. Quote Link to comment Share on other sites More sharing options...
Merrill Posted September 1, 2004 Report Share Posted September 1, 2004 Yes, you can have POTS for a very long time without knowing it or even considering you have a diagnosable condition. By the way, this term "full blown pots" -- where does it come from? ... I've never heard any physician use that term or read it in any of the medical articles I've seen. I have a feeling people use it to mean "the time when they felt at their worst" (and maybe then sought a diagnosis or medical care) ... and that can mean different things to different people too. One person may be able to work full time and still be at their personal worst; another person can't get out of bed without passing out. Everyone's experience with this thing is unique! Quote Link to comment Share on other sites More sharing options...
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