mrsdavidson8605 Posted September 12, 2008 Report Share Posted September 12, 2008 I had been doing so well (that's why I havent been on here much) then, like a wave, it hit me on Saturday. I've been down ever since. I know that POTS does that, but it doesn't get any easier everytime I go through a bit of a relapse. I think it hurts me more emotianally than anything else... I hate being trapped in this body when I don't feel good... ugh.... Quote Link to comment Share on other sites More sharing options...
flop Posted September 12, 2008 Report Share Posted September 12, 2008 When you have had a period of relative good health then have a flare it seems even worse as you are more aware of your limitations / what you could do a few days ago. Unfortunately these flares to come to try us but most people get back to their baseline fairly quicky. All sorts of things can trigger a flare, often a cold or having overworked yourself is the culprit (so easy to overdo things when you are feeling well). If you haven't read the spoon theory it is worth searching for on but you don't look sick.Hope you're feeling better soon,Flop Quote Link to comment Share on other sites More sharing options...
momofsara Posted September 13, 2008 Report Share Posted September 13, 2008 Sorry you are having a flare, I know Sara gets even more depressed when she is worse physically. Its hard to be "up" when your body is "down". Just know that we are all here for you any time you need a shoulder.........Take care and be good to yourself. Susan Quote Link to comment Share on other sites More sharing options...
ajw4790 Posted September 14, 2008 Report Share Posted September 14, 2008 Hi,I am sorry! That has to be soooo frustrating! I haven't had much in the way of a time where symptoms were not too bad, and then have a relapse. So, I am not sure I have much insight. Just take care of yourself, try decrease stress etc. that could be making it worse. It maybe due to all the weather we have been having with all the hurricanes etc. I know the weather has been getting the best of me. Hopefully this flare up will be short and relief is in the near future! Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted September 15, 2008 Report Share Posted September 15, 2008 This happens to me too. So far for me, each flare up is shorter and less intense, in general. The most disturbing thing I still experience is the skipped/odd heartbeats which come with flare ups and can last for weeks after I feel otherwise better.I know a flare up is a terrible and frightening thing b/c in the back of your mind you can?t help wondering is this going to spiral down and get a lot worse? Will I bounce back?I find I need good sleep and that is the first defense against flare ups. Not always easy to accomplish and when you are feeling better you can forget that your body does need more rest than the average person. Hope you feel a lot better soon!Katherine Quote Link to comment Share on other sites More sharing options...
gertie Posted September 15, 2008 Report Share Posted September 15, 2008 Everytime I feel better for a couple of days I get very optimistic that things are changing & I will be well. Then when I relapse again I'm very angry & disappointed in myself. I've been doing this for 25 years & should know by now I'm never going to be "normal" but I keep dreaming. It's an emotional rollercoaster. Quote Link to comment Share on other sites More sharing options...
Stace915 Posted September 15, 2008 Report Share Posted September 15, 2008 Hope you are doing a little better... keep your head up! We are all here for youStaci Quote Link to comment Share on other sites More sharing options...
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