pamyla Posted September 10, 2008 Report Share Posted September 10, 2008 Hi all, in case you haven't seen this yet, there are multiple free talks being offered throughout the week that you can listen to online.http://www.restministries.org/invisibleill...illnesshome.htmEnjoy ;-)Pam Quote Link to comment Share on other sites More sharing options...
DancingLight Posted September 12, 2008 Report Share Posted September 12, 2008 Thank you Pamyla!Emily Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted September 12, 2008 Report Share Posted September 12, 2008 We're considering doing something for invisible illness week next year. thoughts anyone?Nina Quote Link to comment Share on other sites More sharing options...
ajw4790 Posted September 14, 2008 Report Share Posted September 14, 2008 Not sure? Like something to raise awareness? I am not really familar with things to do etc. for something like this, especially where we are all spread so far apart. I guess something like wearing the t-shirts that week could be one idea. Maybe something like that radio talk recently with a dr. sharing facts etc?Maybe others have ideas??? I am not very creative. Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted September 14, 2008 Report Share Posted September 14, 2008 I get you on not feeling all that creative right now... me and all the other moderators haven't been feeling well and we're short on ideas, but we do have a whole year to think about it. I know in the past we've done things like sell bracelets, we ran a bunch of eBay auctions where the proceeds went to DINET, etc. All of those things require human hours that we're often limited with, so I've been trying to think of something simple, and easy... but I'm coming up empty.Nina Quote Link to comment Share on other sites More sharing options...
firewatcher Posted September 14, 2008 Report Share Posted September 14, 2008 Does anyone know any famous people with dysautonomia? I know Greg ?, the yellow Wiggle, left the Wiggles show because of POTS. Could someone contact him for some memorabilia for auction or as a spokesperson? Quote Link to comment Share on other sites More sharing options...
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