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general question


glimmer
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First I want to say that I appreciate that you are all so available and kind. I have felt less scared just in the past couple of days knowing that I'm not alone. I've even been able to read a book that's been sitting around- concentrate better.

That being said, I'm wondering how many of you have swollen glands. I have them in my neck and under my arms and in my groin. And I wonder sometimes if this is from my systems being thrown into disarray by dysautonomia or is it the culprit of the dysautonomia -like an infection in my body. I have read that some of you have had various catalysts like pregnancy, giving birth, an ear infection, neck problems etc starting this whole process of problems. But I also read that some of you have been diagnosed with CFIDS and Fybromyalgia, etc. I'm wondering if everyone with dysautonomia has swollen glands or just some of us. Or am I the only one. Thanks.

Glimmer

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Hi there. Funny you should ask that. I was just noticing how especially tender one of the glands in my neck is this morning. I have had swollen glands in my neck and groin since about 4 years ago when I was diagnosed with celiac (gluten intolerance). I also have fibromyalgia. I was just dx'd with POTS this summer. My doctors over the years could never really expalin my swollen glands. I've had a CT scan on my neck just to make sure there wasn't anything cancerous going on.

I've gotten so many explanations from different doctors regarding the glands...

Here are a few that sound plausible: a reaction to the many food sensitivities I have/ and/or a constant viral state that my body might be in (Epstein Barr?) and/or a continuous autoimmune response. Anyway, you're not alone on that. I've read many posts from others with swollen glands. I just monitor mine to make sure there aren't any drastic changes in them. I was considering getting one in my neck biopsied when I go to Mayo next month.

Hope this helps. And yes, having this forum for support is a true blessing! :)

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Nope, you're not the only one. I have perpetually swollen glands in my neck...and my groin will get them when I have any kind of cold, flu, etc. I was previously diagnosed with CFIDS and Fibromyalgia.

Nina :)

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From the time I was a small child, at every doctor visit they always commented that my glands were swollen. Literally, every visit! And to this day they still are swollen, although sometimes more so than other times.

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I have tons of these in my groin. They have been there always to some degree but increased in number when I got POTS. Although this could be that I lost so much weight that I just feel them more easily.

Amy

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Thanks everyone for your imput. I don't know if I had swollen glands before I got POTS but I know as a child I had food sensitivities to wheat and dairy but I only realized/ remembered that after I got full-blown sick 6 years ago and I was looking back in my life for clues. I still do have those food sensitivities but I pretty much stay away from wheat and dairy and even sugar now.

Glimmer-

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Guest Julia59

I have had swollen glands under my armpits for so long I can't remember when it started----if it was before POTS or after. They are about the size of quarters or a 50 cent piece. When I had my last mammograhm-------they had to do an echo also, because they said I had a swollen lymph node. I guess i'm OK because they weren't concerned after the echo.

It could be so many things----the chemical exposure, my hashemoto's, the POTS----who knows.

That's my input for what it's worth------- :rolleyes:

Julie :0)

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I am also gluten intolerant and am 99% sure I have CFIDS- I have an appointment in 6 weeks with an autonimmune specialist to do testing for this as well as fibromyalgia. My glands are constantly swollen, and I get aches & pains a lot, I always feel like I have a virus. I recently tested positive for EBV...there is definitely a connection and I am in the process of finding out what it is...but I do know when I actually am sick, the achiness and glandular swelling is incredibly bad.

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