Sue Posted August 26, 2004 Report Share Posted August 26, 2004 Hi everyone!!I am wondering does anyone else have this. When Sue sleeps she will be very still, actually at times I have believed that she has passed on. (not a very good feeling) but lately in her sleep she has this full body jerking.. Does anyone else experience this?? She usually does this three or four times a night and does not wake up???Thanks for your helpSues hubby Quote Link to comment Share on other sites More sharing options...
Merrill Posted August 26, 2004 Report Share Posted August 26, 2004 My husband doesn't have POTS and he does both things you describe--sleeps so soundly and breathes so quietly I too get scared ... and he also sometimes suddenly jerks (which doesn't awaken him, but will awaken ME!)Is she waking you up--or are you sleeping less soundly yourself because you're quite naturally and wonderfully worried about her? I wonder if this is new (a side effect from a new medication maybe?) or whether you're only just now noticing?My personal opinion is that it's not something to worry about... but as with anything, if you're concerned, check with her doctor (or ask yours)! Take care,Merrill Quote Link to comment Share on other sites More sharing options...
morgan617 Posted August 26, 2004 Report Share Posted August 26, 2004 i think it's pretty common. my husband does it constantly and has for a long time. i do it sometimes too. i think there's a medical term for it, but can't remember. if it's just jerking legs, it's called restless leg syndrome. i tell him he's got restless body syndrome! morgan Quote Link to comment Share on other sites More sharing options...
opus88 Posted August 26, 2004 Report Share Posted August 26, 2004 Restless legs is different from jerking. They are both due to chemical imbalances, though.The jerking can supposedly be helped by melatonin. My husband refuses to try it, unfortunately. This has been going on for about a year now. Sometimes his arms or legs jerk so strongly that I'm afraid he's going to wind up unknowingly giving me a black eye!I struggle with restless legs, and I had read a long time ago about the way to deal with it. But I can't remember now what the information was, as I wasn't having trouble with it at the time I found it. Quote Link to comment Share on other sites More sharing options...
morgan617 Posted August 26, 2004 Report Share Posted August 26, 2004 they use quinine a lot for restless leg syndrome. but with our intolerances, not sure i'd want to try it. that's the only thing i know of. morgan Quote Link to comment Share on other sites More sharing options...
blackwolf Posted August 26, 2004 Report Share Posted August 26, 2004 I've had the full body muscle spasms/jerking, but I do wake up with them about half the time they happen. My hubby says it happens about 10 times a nite. I was never bugged by it to much to pay attention, it doesn't hurt like some of my twitching/muscle spasms.PS I tryed quinine once, and only once. The reaction was to horrible to relate.Let's just say 4 days in the hospital. Quote Link to comment Share on other sites More sharing options...
briarrose Posted August 26, 2004 Report Share Posted August 26, 2004 I took Quinine for daytime muscle cramps in my legs and it seemed to be beneficial for awhile.AnywayNocturnal MyoclonusPeriodic involuntary leg movements or jerking motions during sleep may cause a lighter, less restful sleep.Restless Legs SyndromeInvoluntary, periodic nocturnal leg movements disrupt sleep and cause leg discomfort once you awaken.Sleep ApneaApnea sufferers stop breathing for 10 to 60 seconds or longer and often awake with a loud snort or jerking motion when they gasp for air, resulting in disruptions to sleep several times during the night and contributing to increased fatigue and sleepiness during the day. Repetitive violent jerking can arise from sleep-related seizures. Quote Link to comment Share on other sites More sharing options...
Dawg Tired Posted August 27, 2004 Report Share Posted August 27, 2004 I do the full-body jerking thing, it used to scare Hubby - he thought I was having a seizure or something! Now he's used to it. He says at least that way he knows I'm still alive! Quote Link to comment Share on other sites More sharing options...
Sue Posted August 27, 2004 Author Report Share Posted August 27, 2004 thank you everyone for your responses, I just feel better when I know she isn't the only one who does this. It has been such a difficult year for her and I worry when a new symptom appears. Quote Link to comment Share on other sites More sharing options...
ethansmom Posted August 28, 2004 Report Share Posted August 28, 2004 My boyfriend does this a LOT...and I'm the one with POTS He also sleepwalks and talks to me in his sleep, so I don't know what that means! I think it's great though that you are so concerned for Sue and her well being Quote Link to comment Share on other sites More sharing options...
Catelynnw3 Posted August 30, 2004 Report Share Posted August 30, 2004 Hi,Just thought I'd put my two cents in before I head to bed. My husband tells me I do this also, actually it happens as I am falling asleep sometimes too. I kinda feel like there is too much energy and it has to be released. Very strange feeling. I sleep like a rock sometimes and wake up feeling like I spent the whole night doing whatever I dreamt about. It's frustrating to think that I already did all my errands only to wake up and find out I am exhausted and haven't done anything yet. Oh well, good night and God bless you.Cathy Quote Link to comment Share on other sites More sharing options...
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