firewatcher Posted July 25, 2008 Report Share Posted July 25, 2008 Lets have a POTS (with NO pity) Party! What would you bring if all the party participants were dysautonomiacs? I'll bring the hundred-gallon fountain of gatorade, salty pretzels and tiny bran muffins (no tofu manicotti, that's the other thread!)Next?P.S. I'll also bring the air tank, cause I don't think any of us could blow up balloons! Jennifer Quote Link to comment Share on other sites More sharing options...
lorrie Posted July 25, 2008 Report Share Posted July 25, 2008 I'll bring the lounge chairs so we can rest while we party!!! Maybe some compression stockings for those who party too hard. Quote Link to comment Share on other sites More sharing options...
maryfw Posted July 25, 2008 Report Share Posted July 25, 2008 Gatorade Quote Link to comment Share on other sites More sharing options...
firewatcher Posted July 25, 2008 Author Report Share Posted July 25, 2008 Oooh how about those blow-up, moon-boot thingys that inflate and deflate over your feet and calves! I had those after my BP bottomed out after the delivery of my second child...they were great! Quote Link to comment Share on other sites More sharing options...
ironsc Posted July 25, 2008 Report Share Posted July 25, 2008 A pool. In the shade, with cool water and an extra large shallow end with lots of seating space.Also bring a catering company to cook/serve, so we can sit! Quote Link to comment Share on other sites More sharing options...
MelissaCrystal Posted July 26, 2008 Report Share Posted July 26, 2008 Crap, what can we substitute alcohol with? =( Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted July 26, 2008 Report Share Posted July 26, 2008 I'll bring the memory foam mattresses to cover the floor and all the hard surfaces...that way anyone who suddenly takes a tumble will just land softly on a lovely foam floor. Quote Link to comment Share on other sites More sharing options...
sheba Posted July 26, 2008 Report Share Posted July 26, 2008 If I could I would bring the suprise guest and it would be God and he would cure us all and we would all rejoice and be healed. Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted July 26, 2008 Report Share Posted July 26, 2008 Comfy soft pillows, a selection of baked goods, flowers, seat canes.I'd invite the makers of compression garments to help subsidize the party and give party favors of compression panty hose!I'd go over to where God was sitting and ask her "What were YOU thinking?I'd be so happy to see in person my dinet family having a good time!nice diversion for my thoughts...thanks!tearose Quote Link to comment Share on other sites More sharing options...
firewatcher Posted July 26, 2008 Author Report Share Posted July 26, 2008 Comfy soft pillows, a selection of baked goods, flowers, seat canes.I'd invite the makers of compression garments to help subsidize the party and give party favors of compression panty hose!I'd go over to where God was sitting and ask her "What were YOU thinking?I'd be so happy to see in person my dinet family having a good time!nice diversion for my thoughts...thanks!tearoseSomeday, we shall have this party and we will DANCE! Not this lifetime maybe, but in my hope for forever. Quote Link to comment Share on other sites More sharing options...
Tammy Posted July 27, 2008 Report Share Posted July 27, 2008 I would bring good movies to watch so that all the conversing with friends I see don't over-stimulate my ANS... so we could quietly sit together and enjoy the presence of each other without being in an exhausting social setting Quote Link to comment Share on other sites More sharing options...
taylortotmom Posted July 29, 2008 Report Share Posted July 29, 2008 I'll bring a basketful of sunglasses! I'll also chip in for a keg of Green Rain Gatorade- it's the only flavor I can stomache And lots of peanut butter crackers and chicken noodle soup and a case of Morton salt. Ha- this could be fun!Carmen Quote Link to comment Share on other sites More sharing options...
Dawg Tired Posted July 29, 2008 Report Share Posted July 29, 2008 Elegant parasols. Quote Link to comment Share on other sites More sharing options...
Ernie Posted August 4, 2008 Report Share Posted August 4, 2008 Hi,Good music and disk joker and partners to dance with. Quote Link to comment Share on other sites More sharing options...
momofsara Posted August 4, 2008 Report Share Posted August 4, 2008 Since my daughter is the one who suffers, and I'm only here because of her---I will bring gentle hugs to pass around to the party.....And I will be happy to serve everyone... That is my contribution to the party , its what I'm best at, being a caregiver---- Quote Link to comment Share on other sites More sharing options...
firewatcher Posted August 4, 2008 Author Report Share Posted August 4, 2008 Since my daughter is the one who suffers, and I'm only here because of her---I will bring gentle hugs to pass around to the party.....And I will be happy to serve everyone... That is my contribution to the party , its what I'm best at, being a caregiver---- May God truly bless you. Mothers are the unsung heroes of human history. No one can understand the love and sacrifice that is demanded to be a mother and do it well. Thank you. Quote Link to comment Share on other sites More sharing options...
Maxine Posted August 5, 2008 Report Share Posted August 5, 2008 Good Movies, CHOCOLATE COVERED PRETZELS, comfy clothes, and COMFY seating. We can also have alcohol free margaritas WITH SALT.Maxine :0) 1 lb. wedge of honeydew melon, seeded ? c. lemon juice ? c. orange juice 3 tbsp. Splenda 4 lemon or lime slices (optional) coarse kosher salt for rim of glasses (optional)-------------------------------------------------------------------ALCOHOL FREE MARGARITA 2 cans limeade (12 oz.)3 liter sparkling water1 orange, sliced2 limes, slicedcoarse kosher saltMix together in large bowl. Add crushed or cubed ice. Makes 12 (8 ounce) cups. Add salt to rim of glass.Maxine :0) Quote Link to comment Share on other sites More sharing options...
Pat Posted August 6, 2008 Report Share Posted August 6, 2008 Lets have a POTS (with NO pity) Party! What would you bring if all the party participants were dysautonomiacs? I'll bring the hundred-gallon fountain of gatorade, salty pretzels and tiny bran muffins (no tofu manicotti, that's the other thread!)Next?P.S. I'll also bring the air tank, cause I don't think any of us could blow up balloons! JenniferThis is a great idea! I will bring an air conditoner and a heater, it is a very fine line for comfort. My boys will bring the humor, they think it is really funny to tell people their mom has went to POT! Quote Link to comment Share on other sites More sharing options...
shannon Posted August 6, 2008 Report Share Posted August 6, 2008 I'd bring wine glasses so that we could drink our gatorade in style! Quote Link to comment Share on other sites More sharing options...
hollie Posted August 18, 2008 Report Share Posted August 18, 2008 I'll bring all the drs. that thought it was all in my head so I can show them that it's real!!! Oh... and chicken broth cuz I want to see how many people actually can down it! Hollie Quote Link to comment Share on other sites More sharing options...
Stace915 Posted August 19, 2008 Report Share Posted August 19, 2008 I'll bring personal mini fans that we can give out as party favors, and some salty tortilla chips to enjoy with the virgin-margaritas! I'll bring my puppy too, he is funny to watch and can provide entertainment and keep some of the kids occupied so their parents can relax!Oh and we can make jello shots out of gatorade lol. Quote Link to comment Share on other sites More sharing options...
firewatcher Posted February 11, 2011 Author Report Share Posted February 11, 2011 I am feeling the need for another POTS party. Any new additions? Quote Link to comment Share on other sites More sharing options...
Noreen Posted February 11, 2011 Report Share Posted February 11, 2011 I am feeling the need for another POTS party. Any new additions?A truckload of zero gravity chairs modified with electric scooters so we can get around yet rest at will.Those margaritas sound great.EDIT: forgot to add epsom salt footbaths. Quote Link to comment Share on other sites More sharing options...
kayjay Posted February 19, 2011 Report Share Posted February 19, 2011 OK this is rude but we could all bring our meds and swap! Im not sure what's hurting or helping. We could have standing contests... that would be "fun" Quote Link to comment Share on other sites More sharing options...
juliegee Posted February 27, 2011 Report Share Posted February 27, 2011 OK this is rude but we could all bring our meds and swap! Im not sure what's hurting or helping. We could have standing contests... that would be "fun" I needed a good chuckle. I got it from "standing contests." The visual is crazy. I guess I'll bring plenty of padding to fully pad the room- floors and walls- never know with us crazy potsies, drinking all of those Margaritas and doing Gatorade shots while standing till we drop. Quote Link to comment Share on other sites More sharing options...
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