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What Do You Do During An Episode..


mom4cem

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Benadryl got me through the worst POTS episodes I have ever had, before I knew it was POTS. I did not know what all this was, I just knew it made me feel better. Afterwards, my docs and I figured out that it is potent CNS depressant first and just so happens to be an anti-histamine aside from that, so it hits the ANS and your reaction to mast cell degranulation if you are hyperadrenergic and have that. I usually sit down on my feet (acts like a muscle pump) or lie down if I can. My HR slows if I am on my right side, I guess it's a gravity thing. If I bend over at the waist or lean over on a counter, my HR will lower as well. I grey-out if I crouch too long. I have not had anxiety except during my big crash last year and I got through that with the mantra "this is NOT real, there is no REASON that you feel this way..."

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