ana_22 Posted July 22, 2008 Report Share Posted July 22, 2008 Hi, i introduced myself earlier, since then i have been diagnosed with POTS via TTT.One of my main complains is GI stuff.... no appetite, cant tolerate certain foods, nausea etc.I had extreme constant nausea for 3 months and it seems to have settled over the last month (fingers crossed) and now it only rears it ugly head a few times a day. Despite this i still have NO appetite at all and really have to force myself to eat any kind of food. My question is has anyone ever lost there appetite with POTS probably due to nausea and then have it eventually come back?thanks Quote Link to comment Share on other sites More sharing options...
Carly87 Posted July 22, 2008 Report Share Posted July 22, 2008 Same thing happened to me in the beginning! I went 6 MONTHS without an appetite. I remember it well...Eating was never enjoyable to me, I just did it because I had to. I lost a lot of weight. I remember the first time I got hungry so well too!! I was with my roommate and all of a sudden I felt hunger so I took advantage of it and ordered the tastiest most fattening chicken finger sub ever. Not a good food for us POTS people, but it sure tasted good at the time. Since then, the appetite has wavered with my symptoms, but do not fear...It will come back! Quote Link to comment Share on other sites More sharing options...
Ernie Posted July 22, 2008 Report Share Posted July 22, 2008 Hi,The day I got sick I lost my appetite for months and lost 30 lbs. I don't remember for how many months because that is 8 years ago. Now my appetite is back and so is my weight! Quote Link to comment Share on other sites More sharing options...
HoudiniCat Posted July 22, 2008 Report Share Posted July 22, 2008 Yes, in the beginning I was nauseous a lot and had little, if any, appetite. I dropped about 20 lbs. in 2-3 months. I had to force myself to eat. Between the nausea and the stress of not having a dx, having a million tests done, then finally having a POTS dx and trying to get a handle on what that meant, I think that really killed my appetite. Slowly but surely, it did come back though. Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted July 22, 2008 Report Share Posted July 22, 2008 I've learned to ignore the constant nausea. In my 20's and 30's, it was harder to ignore and I was much thinner b/c of it. Now it only bothers me when I get REALLY nauseated to the point where I feel I may vomit.Nina Quote Link to comment Share on other sites More sharing options...
ljoeb Posted July 22, 2008 Report Share Posted July 22, 2008 I was having pretty regular nausea until I started taking "Lyrica" for a nerve burning pain I am having. Its weird, but I haven't had much nausea at all since then... and my appetite is stronger than its been in a longggggtime! Quote Link to comment Share on other sites More sharing options...
summer Posted July 22, 2008 Report Share Posted July 22, 2008 I also had a lot of nausea when I first got sick, and lost weight. Now, 16 months later, it comes and goes with my other symptoms, and when I am feeling better, I am not nauseated, and my appetite is normal. But I would say that at first, it was one of my most bothersome symptoms. Quote Link to comment Share on other sites More sharing options...
firewatcher Posted July 23, 2008 Report Share Posted July 23, 2008 I too had nausea, but after 4 months it settled out. My appetite is back, but the thirst is far worse. I just seem to borrow any fluid that I drink. Eat the best food you can stomach in small amounts and your appetite should come back. Have you had your electrolytes checked? That can definitely cause nausea.Jennifer Quote Link to comment Share on other sites More sharing options...
Tammy Posted July 23, 2008 Report Share Posted July 23, 2008 First year for me I had no appetite, the second year it wax and waned and now, mostly, unless I'm having a very symptomatic time during the day, I can eat. But something stressful in my life will throw my appetite out the window for a few days at a time, so it really varies. Hope your appetite improves with time... I'm sure it will, as it does for most of us. If it's the nausea that is bothering you, you may want to try ginger tea... it really does help and you may feel hungry after about an hour of drinking the tea. Take care. Quote Link to comment Share on other sites More sharing options...
ana_22 Posted July 23, 2008 Author Report Share Posted July 23, 2008 yay!!! from everyones experiences looks like it may just come back!!!thanks for sharing guys! x Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted July 23, 2008 Report Share Posted July 23, 2008 Like others, my nausea wax and wanes. I too drink ginger tea to soothe the feeling. When my GERD or gastroparesis is active then I have more trouble. I use OTC things to take the edge off too.tearose Quote Link to comment Share on other sites More sharing options...
lorrie Posted July 24, 2008 Report Share Posted July 24, 2008 Believe it or not, it will get better. The constant nausea can really get the best of you at times, but you will either get more used to it or it will improve over time. Hope you feel better soon. Quote Link to comment Share on other sites More sharing options...
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