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Hi, I am new to the posting so i hope I get this figured out and post correctly. :) Due to the brain fog of pots, and not being comp. savy. I am so glad to have found you all. I was recently diagnosed with pots, although like many have had symptoms for many years.

I do have a few questions. What type of doc. are the pots people using? I have a nerologist treating me, and am wondering if I should have a cardiologist. I also was wondering if any of you are taking antibiotics before dental treatments. My dentist said he would not treat me until i took antibiotics, although my Nero said I do not need them. My dentist was concerned as heart patients can have a heart attck, from the bacteria spreading in the blood stream. Hum... I am so confused on what to do, any suggestions would be so helpful! Thanks so much, Richland Acres ( Our little hobbie farm)

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welcome aboard! the only time people need antibiotics with dental work is for mitral valve regurgitation and that's not even often. it sounds like your dentist may be overly cautious, unless you have significant valve disease. i see an internist. there are no doctors in my area that know anything about oi, but i am blessed with a great doctor that does everything he can to help me. i guess the type of doctor you go to depends on the problems. if you have cardiac problems, then by all means see one, but you may find there aren't a lot of doctors out there that don't know much about this. you need to be prepared for an interesting journey in the life of dysautonomia :blink: you will find this board very useful especially at first when there are a zillion questions, and when you need to vent in frustration and when you need a shoulder to cry on. this is a great place and i am happy you found it! again welcome, and don't let me scare you off :) morgan

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Welcome to this board!

I second everything Morgan said. Many people have multiple speciality doctors depending on their symptoms and needs. If your looking for a specialist in your area, it's best to look under physicians on this board or NDRF, probably about the same.

Everyone here is great, understanding, friendly, supportive and overall just a second family :)

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Welcome! We are glad to have you here on the board. There is a list of physicians at these links that may be helpful:

http://www.ndrf.org/physicia.htm

http://www.dinet.org/physicians.htm

Both neurologists and cardiologists can treat POTS, as it is such a complex disorder that it's hard to narrow it down to one or the other. As far as anitbiotics...I've always opted not to have them with dental work, or anything else- I had surgery on my ankle and I did not and I was fine, so it's a risk you have to decide if you want to take- I've never had a doctor insist, though. Good luck with your treatment, and I hope to see you here often!

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I too agree w/Morgan--antibiotics are prescribed before dental work if you have been diagnosed with a heart condition like mitral valve prolapse (there's a one in a million chance you'd need them anyway, but you--and your dentist--would hate to have you be that one!) Dysautonomia/POTS is not a heart condition that would warrant antibiotics before dentistry.

I was diagnosed by a cardiologist because I wanted to know why my heart was racing upwards of 140 all the time (while awake). His team ordered the autonomic nervous system testing after I went through a series of other cardiac tests to rule out other problems. I saw my dentist in the middle of my testing and we decided to wait until I had a diagnosis before proceeding with treatment. Once we learned it was POTS and nothing cardiac, we went forward w/out antibiotics.

Welcome to the Forum; this is a great place to find information, advice, and friendship. :)

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You folks are so good at helping out that I've got nothing left to say other than "what all those people said above!" :)

Welcome to the board--glad you found us. :blink: Nina

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Just wanted to say hi and welcome! I'm one of the exceptions in this case. I DO take antibiotics before dental work becasue I have Mitral-Valve Prolapse/MVP. If you feel more comfortable taking the antibiotics it probably won't hurt you. Get your specialist to talk to your dentist, or change dentists if you want to. I would suggest going to see a cardiologist to make sure you don't have any other heart problems that would warrant the antibiotics and to have the cardiologist talk to your dentist to let him/her know whether or not you really need to take the antibiotics. The most important thing, I think, is for you to feel comfortable at ALL times.

Really, the same thing everyone else said. I hope you find as much comfort as I have here. :blink::)

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just wanted to say....

welcome!!!!

glad that you found this board....it is such a great place for support and information and just to check in and know you are not alone.

i don't have any new tips either...other folks said it all...

but...you can never have too many "welcomes," right? <_<

emily

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