Randi Free Posted May 16, 2008 Report Share Posted May 16, 2008 My daughter has been dealing with an elevated temperature for about a week now. It gets up to about 101 degrees. She isn't sick. We are wondering if this is a POTS thing? Seems reasonable that if she has no automate control over blood pressure and heart rate it could extend to whatever controls body temperature?I called the cardiologist and spoke to his assistant yesterday. He has no idea about this but he did say that the daily falling down doesn't sound POTS related if she isn't blacking out with it? We see the cardiologist again Tuesday. Can anyone tell me what tests we would need to ask for to rule out ED.Randi Quote Link to comment Share on other sites More sharing options...
flop Posted May 16, 2008 Report Share Posted May 16, 2008 Hi Randi, can you explain "ED"?Thanks Quote Link to comment Share on other sites More sharing options...
Randi Free Posted May 16, 2008 Author Report Share Posted May 16, 2008 ED-Ehlers Danlos, sorry for not being explicit. Guess that could have been several things :Hi Randi, can you explain "ED"?Thanks Quote Link to comment Share on other sites More sharing options...
flop Posted May 17, 2008 Report Share Posted May 17, 2008 Ah, I tend to shorten Ehlers-Danlos Syndrome to EDS. The only medical abbreviation I could find for ED was erectile dysfunction which wasn't really appropriate!!Got to dash right now but I'll try to post more about Ehlers-Danlos diagnosis later.Flop Quote Link to comment Share on other sites More sharing options...
gelann Posted May 18, 2008 Report Share Posted May 18, 2008 Hi Randi,My daughter also get huge temperature variations. She can go from 91 to 103 in a very short time. Dr. Grubb told us that the temperature issue is less common than the other issue with POTS. Her autonomic nervous system is affected more than just blood pressure drops. Her main issue are the passing out, digestive problems and temperature control. We were pleased when we finally understood what was going on. Doctors looked for infections when her temperature issues started.Good luck to your daugher.Gelann Quote Link to comment Share on other sites More sharing options...
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