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Does Anybody Have Little Bodily Quirks


sarct
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This may sound pretty weird, so bear with me.

I am wondering if these quirks I have are a result of my condition.

I spasm my tummy a lot. I make it jump and it's a reflexive impulse. like if I try not to do it I might go nuts.

I also move it side to side. The actual inerds. I shift them side to side. Not my trunk, my inerds.

Also I flex and release my muscles in my legs and buttocks in an almost spasm type movement. My hubby affectionately calls me his jitter bug, because I am always shaking my legs and spasm pulsing my thigh muscles and glutes.

I shake my foot non-stop pretty much. I am just always shakin or moving something even if I hurt I still do it. I can really tire myslef out doing it.

I do it w/o thought. I often don't realize I am doing it either.

I was just wondering if anyone else does this as well.

I had my cardiologist mention that squeezing my legs together may help when I am standing upright to keep from having an episode. I do this all the time anyway and wonder if all my jittering is a way to keep myself from having episodes.

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Interesting point. Maybe so. I think a lot of what we do, we do unconsciously so that we don't pass out. I never realized how much I pace until my legs started killing me- well, it makes sense since I can't stand in one spot for any length of time without getting ill. I know I look like I am on drugs when I'm in a check out line because I'm always moving something- leaning over the cart, or lifting my legs, I just do it and don't think about it unless someone says something. So, I, too am a jitterbug- doing the Potsy Dance, I guess :) But you're right it can really tire you out :)

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You just reminded me of my swaying. When I am standing for a period of time, like in line at a store or something, I rock from side to side. Like I do when I hold a baby. I don't always realize i am doing it till someone watching me gets a look in there eyes, or says something about it. lol

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Totally could be something to help your circulation.

I had an ADD friend who was very fidgety (hyperactive) and noticed that I was too. (I am ADD too, or at least seem that way due to disorders.) I don't think I'm usually fidgety though, only when I have above-average energy.

I did/do the opposite, tensing up my legs and folding them. Helps my blood pressure or something, like they suggest for POTS. But I caused myself more problems due to having such bad and weird postures for so long.

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I have very jiggly legs too, my Mum complains I jiggle the whole sofa if I sit next to her! When I was having my autonomic testing the specialist nurse commented on my inability to sit without jiggling / fidgeting and said that it was probably beneficial to getting blood back up from my feet to my heart. I don't know that I am jiggling, but if you have a compulsive urge to move then reading about "restless legs syndrome" might be helpful for you.

Flop

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I am not ADD (I don't think!) however I have often noticed that I need to move around more than the average person. I notice this sitting in meetings especially. It amazes me how still some people can sit. I feel urges to move my arms and legs that I can't ignore. I am sure it has to do with POTS and blood pooling.

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when i read this post, i couldnt believe it! i am always moving, fidgeting, and shake my foot alot, sometimes i cannot even control it, when i am having a surge and getting so hyper, my leg shakes so bad and then it just stops suddenly by itself and i am also folding my legs in weird positions too, its very exhausting and i wish i didnt have these strange urges,

Radha

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I also fold my legs oddly. My mother in law is forever commenting on how I always have my legs tucked under me. I can never just sit with my legs on the floor. It's hard to sit with them simply crossed. I always bounce the crossed foot when I do it, or the planted foot in on the floor with the heal up bouncing rapidly. I always want my legs tucked in close to me. John is forever placing his hand on my legs to keep them from bouncing, or he will start shaking his foot incesantly to toy with me. He calls me a jack rabbit bouncin about. lol

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Hi,

I too think, if I am understanding your post right, that I can identify with much of what you described. I do think that for the most part this is "typical" for someone with POTS etc. Also, due to what compensatory mechanism the person needs due to lack of blood flow or pressure etc. is dependent on what actions like this one has.

The inerds thing was kinda weird :lol: , I was picturing all kinds of weird things. :unsure: But, I think it could be one of many things, possibly if you have gastrointestinal difficulties or issues it pay be possible that you notice you digestion more or that it's response it more noticeable. Also, I have a weird reflexive flutter of my abdominal muscles that my drs. have often thought was odd. I was told it was likely due to nerve damage after my appendectomy. So, are you talking about your muscles? Is it voluntary or involuntary? If it is voluntary it is your muscles and it may be your body's way of trying to get blood to your brain, like the reason some wear abdominal binders.

Other than that, I am very twichy, can't stay still, and bouncy- sometimes more than others. I also have RLS.

I also have a compensatory mechanism I have seemed to do with greater frequency of tightening my low back, glutes, and hamstrings, in standing or laying down to (what I think) help with blood return and keep it from pooling etc...

Hope that helps! :)

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I do it myself. You know how a dancer can move their waist from side to side w/o moving their hips? Well I can do that with my stomach or my intestines. It helps to go the bathroom at times, or I just do it as kind of a tick thing. Within the last two months i have been having gastro issues, but have had a rock solid stomach up until then. They still aren't sure what exactly is going on but are pointing towards IBS. I have doen this since I was a child though, so I can't really say it is digestive related. I jump my stomach, and flex my lower back quite often. Sometimes to the point that I actually hurt my spine a little. I have great muscle tone. Even when I was heavier I was still toned. I am always flexing my muscles. I had a massage and the lady said I was the thightest, tense person she had ever worked on.

My chiropractor always has to work on me to losen me up before he can adjust me. I keep everything constricted, even to my toes. I notice they are always curled, and often times I wake up in the middle of the night or the morning with sore elbows, because I have them so tight to my body and flexing them throuhout the night when I sleep. I even squeeze pulse my hands.

I mean, I am not compulsive about it, and don't do all the things at the same times. sometimes I will flex someteing and the next it is something else. The times I do this the most is when I am relaxing on the couch, or really nervous about something. I can just never sit still, and when I am forced to I just wanna jump out of my skin, and move about. Sometimes I actually get ill is I have to sit still too long. IO will get a headache, and get clammy.

Edited to ask, is your flutter voluntarily or just comes on? At times I will get a flutter in my stomach as well, and it comes and goes w/o any control on my part. I have also had an appendectomy, so I don't know.

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