SunsetParadise49 Posted April 17, 2008 Report Share Posted April 17, 2008 Sorry I haven't been around lately but I'm just not doing well. I'm frustrated, sad, and getting discouraged which I haven't been in quite a while. I wound up in the hospital Monday night, and got sent home last night because my insurance supposedly wouldn't pay for another day....Dr. Poole thinks the doctor made that up because he thinks my issues are psychological.My blood pressure has still been low while laying down, I can sit on the edge of my bed for half an hour and still feel like passing out (or do actually pass out) on my way to the bathroom or wherever I need to go. My heart races while I'm laying down too and will FINALLY calm down but once I move even the slightest bit, it starts racing again.I feel so sick, I'm drinking (Pedialyte) like I should be but it's making me nauseous....but I keep on drinking anyway because I tell myself I need to even though I know it won't help me that much.I just don't know what to do anymore. Med's don't work, increasing my medications makes my heart rate rise which I don't need as it's high enough already.We're trying to find another Endocrinologist as the one I went to was a nut case and just talked about himself and hardly about me except to say he doesn't think I have Addison's.I really need cheered up, this is the one time when I wish I had friends to come and see me, to send me a card or call me up just to let me vent or cry.I haven't felt this lost, confused, and scared for two years. I had been doing well, staying strong and believing in myself, but I'm loosing that. My mom believes me and is concerned about me, I know Dr. Poole believes me and that is such a relief but still I'm hurt....the doctor in the hospital discharged me saying, "just eat pickles."Thanks for listening and I hope it all makes sense! Quote Link to comment Share on other sites More sharing options...
Ernie Posted April 17, 2008 Report Share Posted April 17, 2008 Hi,I was in the hospital for 3 months last year and was fainting almost every time I was standing even on my meds. My doctors wanted to place me in a nursing home for the rest of my life and I fought and pleaded to go back home and now I am doing much better.I can empathize with you.So there is hope for you too. If you want to call me I will give you my phone number. Quote Link to comment Share on other sites More sharing options...
SunsetParadise49 Posted April 17, 2008 Author Report Share Posted April 17, 2008 Thanks Ernie, I sent you an PM. Quote Link to comment Share on other sites More sharing options...
Megan Posted April 17, 2008 Report Share Posted April 17, 2008 First of all, pickles=ridiculous. Hang in there, hun! You're in my thoughts and prayers!Meg Quote Link to comment Share on other sites More sharing options...
mrsdavidson8605 Posted April 17, 2008 Report Share Posted April 17, 2008 I am so sorry to hear that you are not doing well. It's hard to find the right words to say, but KNOW that there ARE other people in your shoes. You're not alone! I wish we could ALL meet face to face and just have a big group hug!!!! I have been going through a rough time too (not as bad as you). I know how much it can strain on a person... ESPECIALLY when people don't believe you. To me, that's worse than actually being sick. Just know that there are others who care and know just what you are going through. My faith in God is all that keeps me going (besides my family of course). I learned a long time ago, if a doctor "writes me off" as crazy, I do the same to them... "write them off".. It sounds like you may have a supportive PCP, which is WONDERFUL! I can't believe the doc told u to eat pickles!!!???? WHAT!!??? geeze. well hope something in this helps.. keep on fighting!!!! Quote Link to comment Share on other sites More sharing options...
SunsetParadise49 Posted April 17, 2008 Author Report Share Posted April 17, 2008 Thank you all for your replies...they really help boost my self esteem! Quote Link to comment Share on other sites More sharing options...
dizzygirl Posted April 17, 2008 Report Share Posted April 17, 2008 Just eat pickles are your freaking serious!!!!!!!!!!!!!!!!!!!!!!! wow girly.. im so very sorry that your going thru this....i hope that you get some help and relief soon!!!!!!!!!!!thinking of you and sending BIG HUGSdizz Quote Link to comment Share on other sites More sharing options...
dezyrae2 Posted April 17, 2008 Report Share Posted April 17, 2008 Hi I am sorry you are feeling so bad right now. I know how you feel though. I just got out of the hospital Monday. I was in for four days with no new help of course. If you ever want to talk you could call me anytime. I will pm you my cell number. Also i see you are from pa. I am to. What part are you from? Desi Quote Link to comment Share on other sites More sharing options...
SunsetParadise49 Posted April 17, 2008 Author Report Share Posted April 17, 2008 Thank you everyone....I am doing better today mentally, health wise it's the same but mentally I feel a little better from all your support! Thanks again! Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted April 17, 2008 Report Share Posted April 17, 2008 Hang in there. I too am sending you healing wishes. Please don't the negative comment of this one ruin all the good you have worked for. You took charge of trying your best to feel better. No stupid comment should take that away! I think you would feel better if you spoke to him about it OR if you want to , just write it down and then decide if you will mail it or throw it out.The sad part is, that doctor probably doesn't know he insulted you and has not thought twice about your feelings or visit or health. Do not let him drain you of any more energy or joy. He was an idiot and unfortunately, there are a few out there.best regards,tearose Quote Link to comment Share on other sites More sharing options...
flop Posted April 17, 2008 Report Share Posted April 17, 2008 *Hugs from across the pond* I hope that the support of others who understand what you are going through makes things a little more bearable for you.Flop Quote Link to comment Share on other sites More sharing options...
SunsetParadise49 Posted April 18, 2008 Author Report Share Posted April 18, 2008 We're going to try mestinon. The pharmacy has to order it but I'll have it by Monday night. I hope it helps at least a little. Quote Link to comment Share on other sites More sharing options...
flop Posted April 18, 2008 Report Share Posted April 18, 2008 I've not yet had a chance to try Mestinon myself but I have heard that it can be quite harsh on your stomach so starting with a small dose and always taking it with/after food are apparently helpful. I hope it benefits you - let us know how you get on.Flop Quote Link to comment Share on other sites More sharing options...
Alizee Posted April 19, 2008 Report Share Posted April 19, 2008 So sorry you are going through this, "eat pickles, um sure". That Doc definitely was not helpful in the least! I wish I could write more on here but i'm going through a major flare lately, hard for me to think but know I will keep you in my prayers and that we believe you are not crazy!Sending love, hugs and prayers to ya Quote Link to comment Share on other sites More sharing options...
ajw4790 Posted April 23, 2008 Report Share Posted April 23, 2008 Hi,Hope things are continuing to look up! I wish things were going better for you! Sorry I don't really having any words of wisdom, but I am sending positive thoughts and encouragement! PM me is you want to talk to someone.How is the Mestinon working?Hope all is well! P.S. The pickles thing was ridiculous, but it made me laugh something so awful and not helpful would come from a drs. mouth! Quote Link to comment Share on other sites More sharing options...
Maxine Posted April 23, 2008 Report Share Posted April 23, 2008 I'm sorry your feeling so bad lately, and sorry for replying so late. Sending you healing wishes, and I'm hoping the mestinon will work for you.I remember days when drinking that diet suppliment stuff was something I thought might help, but I too felt sick from drinking it. However, I did improve, and was able to eat again. I did things one cheerio at a time. I found nibbling on cereal helped me keep my strength up until I could eat a better diet. I nibbled on cereal, cheese, apple sauce, and other things that wouldn't still up my digestive system too much, but still keep things working. Remember, not using your stomach can cause further problems down the road. The same thing as the brain------" If you don't use it, you lose it".Keep hanging in there----------- HUGS,Maxine :0) Quote Link to comment Share on other sites More sharing options...
juliegee Posted April 24, 2008 Report Share Posted April 24, 2008 Oh Gwendolyn,I've been there too and have gotten better. You can too....one pickle at a time (eyeroll!) Did he really get paid for that advice? Don't let that jerk define you, sweetie. We believe in you. I'm sending lots of love and prayers your way. I know how much they help.Julie Quote Link to comment Share on other sites More sharing options...
SunsetParadise49 Posted April 24, 2008 Author Report Share Posted April 24, 2008 Mestinon is working really well for me. I'm having no side effects which is really nice!Thank you for all your well wishes!! Quote Link to comment Share on other sites More sharing options...
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