mvdula Posted April 10, 2008 Report Share Posted April 10, 2008 Wondering how all of you postpartum onset POTS people (nice p alliteration there!) are doing? Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted April 10, 2008 Report Share Posted April 10, 2008 I was pregnancy-onset. Mine started about ? way through my pregnancy. It took about eight months after delivery to feel anywhere near normal again. Several years later, I am doing generally really well, but I have bad flare-ups that can last several days at a time. Overall, I feel I am pretty lucky. Quote Link to comment Share on other sites More sharing options...
mrsdavidson8605 Posted April 10, 2008 Report Share Posted April 10, 2008 Mine ws pregnancy onset as well, about half way through also for me. That was a year and 3 months ago and i'm still miserable.... Quote Link to comment Share on other sites More sharing options...
mvdula Posted April 10, 2008 Author Report Share Posted April 10, 2008 Thanks for replies. Mine really started more postpartum (though I did have signs during pregnancy). About 9 months postpartum. I am now 19 months postpartum and still miserable. But also questioning my POTS Dx since I do NOT have many of the symptoms of other POTS patients....just my awful episodes. It is miserable though. From what I have read, there are a lot of auto-immune problems that can be triggered by pregnancy/postpartum states. Wish I had known that.... Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted April 10, 2008 Report Share Posted April 10, 2008 kansasgirl--when were you diagnosed? What meds or other treatment have you tried?mvdula--yes that is correct that auto-immune conditions can crop up post-partum. I hope you get answers soon. Quote Link to comment Share on other sites More sharing options...
mrsdavidson8605 Posted April 10, 2008 Report Share Posted April 10, 2008 kansasgirl--when were you diagnosed? What meds or other treatment have you tried?mvdula--yes that is correct that auto-immune conditions can crop up post-partum. I hope you get answers soon.I wasn't diagnosed until October of '07. I have tried many beta blockers, Effexor, middodrine, florinef, salt tablets, and I drink about 70-80 oz of water a day. Quote Link to comment Share on other sites More sharing options...
april abbott Posted April 12, 2008 Report Share Posted April 12, 2008 I developed POTS during pregnancy, as well. I developed symptoms around 4-5 months along, but it took a couple of years to get diagnosed. The good news is that it has been 8 years, and I have finally gone from bed ridden and non functioning to a nearly normal life. Like MomToGiuliana, I feel pretty good most of the time, but still have flare ups for sometimes days at a time. But I go to school full time now and even exercise 3-4 times a week. My biggest triggers are heat, lack of sleep, and stress, and I still don't have the stamina that I should. Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted April 12, 2008 Report Share Posted April 12, 2008 Kansasgirl--have you tried a low-dose SSRI? Since our onset was similar I wonder if the same treatment would be effective. a low dose SSRI helped me tremendously--eventualy-- in the first weeks of taking it I felt worse, but after the adjustment period I saw a huge improvement in symptoms. Anyway, perhaps something to explore with your doctor if you haven't.April--I am glad to hear you are doing so much better! Quote Link to comment Share on other sites More sharing options...
mrsdavidson8605 Posted April 14, 2008 Report Share Posted April 14, 2008 Kansasgirl--have you tried a low-dose SSRI? Since our onset was similar I wonder if the same treatment would be effective. a low dose SSRI helped me tremendously--eventualy-- in the first weeks of taking it I felt worse, but after the adjustment period I saw a huge improvement in symptoms. Anyway, perhaps something to explore with your doctor if you haven't.April--I am glad to hear you are doing so much better!yes, I did try it and it was not effective, unfortunately. Thanks for the suggestion, though. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.