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Help Us
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Dysautonomia Information Network
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| Medical disclaimer | |
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The following is a list of support groups for dysautonomia
patients. These support groups are
not affiliated with the Dysautonomia Information Network. This list does
not constitute endorsement. We do not
recommend or have any further information on leaders, members or group
agenda. Contact us to
add your support group to this list.
|| Mexico || United States ||
| MEXICO | Jaqueline Rouin,
jaqueline@disautonomia.com www.disautonomia.com |
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UNITED STATES |
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| Location: | California |
| Name: | California Dysautonomia Group |
| Leader | Emily Block, eblock@calpoly.edu |
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http://web.me.com/nakedphilosopher19/California_Dysautonomia_Group/Home.html |
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| Location: | Maryland |
| Name: | Maryland Bay Area CFS/Dysautonomia Support Group |
| Leader: | Toni Marshall,410-647-7578, CFSupport-owner@yahoogroups.com |
| Location: | Nevada |
| Name: | NDRF Support Group, Nevada Chapter |
| Leader: | Becky Nicholson, rmnbelle@aol.com |
| Location: | New York (Buffalo) |
| Name: | POTS/DYSAUTONOMIA Support Group |
| Dr. Svetlana Blitshteyn and Mary Curran (marcurran@gmail.com) | |
| http://drblitshteyn.com | |
| Location: | North Carolina |
| Name: | Raleigh Area POTS Support Group |
| Leader: | Mary Fosnaught, marynhans@aol.com |
| Marva Babb, tooBabb@aol.com | |
| Location: | United States - Multiple System Atrophy Groups |
| Name: | SDS/MSA Support Group |
| Leader: | Don Summers Don.Summers@shy-drager.com (Leaders may add their own groups individually) |
| Website: | http://www.shy-drager.org/ |
| Location: | Virginia & beyond via email & telecons |
| Name: | NOVA MVPS/Dysautonomia & OI Support Group |
| Leader: |
Elly Brosius, MVPS-D_OI_NOVA-owner@yahoogroups.com |
| Meetings: | Second Tuesday of every month, noon eastern, by conference calls. |
| Email group leader for details. | |
| Website: | http://www.cfsnova.com/mvpsoi.html |
| Email Group: |
http://health.groups.yahoo.com/group/MVPS-d_oi_nova/ |
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