HELP!
We Want You to be a Star!
Help get the word out about how it feels to walk in your footsteps. What is it like to live with your illness? The Dysautonomia Information Network will be featuring member’s pictures in our upcoming documentary. To take part, please send your picture along with your first and last name, age, diagnosis, and signed release form (available at http://www.dinet.org/release.htm) to Alexia Anastasia at worththewords@hotmail.com. You may include a one sentence, personal quote to be included with your picture in the film.
If you are located in Michigan or Florida, you may be able to help with our documentary in a more significant way. We are looking for one more patient to feature in our documentary. Ideally, this person will be a mother under forty who is moderately to severely affected by POTS, NCS and/or another form of dysautonomia.
The ability to talk openly and candidly is a must. Please contact Michelle Sawicki at staff@dinet.org if you fit this profile and would like to take an active role in educating the world about dysautonomia.
*Note: Please make sure you are not wearing any clothing advertising products in your picture.
Printing: We Need Your Help!
Do you have access to free or discounted professional printing services?
We’d like to have a few hundred brochures on POTS printed up.
Please write to us at staff@dinet.org
if you can assist with printing or printing costs. Thank you!
Put your used publications to good use!
If you have old copies of Clinical Autonomic Research journal, please consider donating them to DINET. Copies can be mailed to:
DINET
PO Box 55
Brooklyn, MI 49230
UNITED STATES
Please include your name and address so we can properly thank you for
the donation.
Grants Needed! Please Help!
Grant researching and writing is and art. Are you a grant artist? We need assistance in grant searching and writing. If you have experience in those areas, please contact DINET at staff@dinet.org and become a ‘grant winning’ volunteer!
| In this Issue: |
|
 |
Doctors and
DINET |
|
HELP! |
|
Meet the Member |
|
Press Releases |
|
Research in Review |
|
The Patient's Voice |
|
|
Thank You
|
|
Dysautonomia
News exists to inform and educate. The content should not be used as a
substitute for professional medical advice, diagnosis or treatment.
Readers are encouraged to confirm all information with other sources
and a physician. Please keep in mind that research is evolving and
future discoveries may change or disprove some currently held beliefs.
|
Does your place of business or family give to charity? If so, please let them know about the Dysautonomia Information Network, www.dinet.org. DINET is completely funded by member's donations and can't exist without them. Thank you!
Dysautonomia News is a quarterly publication
of the Dysautonomia Information Network.
Subscribe to Dysautonomia News at www.dinet.org/join.htm