Greetings!
I'm brand new to the site - and Dysautonomia as a whole - but I wanted to reach out in hopes of maybe finding some comfort!
As a disclaimer, I know asking for medical advice is against the rules, so I want to be clear that I'm not trying to do that! I just want to explain what I'm going through and see if maybe anyone can relate.
For the past 10 or so years, I've had episodes of syncope. I've also experienced low blood pressure, anxiety, and headaches. Recently, however, those symptoms really became bothersome. My presyncope episodes have increased, and I generally feel terrible. I've been to a cardiologist, endocrinologist, regular family doctor, gastroenterologist, and back to the cardiologist. No one has any answers. Here are my symptoms:
Fainting - out of nowhere!
Feeling like I'm going to faint - also out of nowhere
Racing pulse - also out of nowhere
Heart palpitations (feels like flip-flopping, or skipped beats)
Nausea
Hypotension (resting rate is around 80/45)
Hypoglycemic episodes
Migraines
Panic attacks/Anxiety
Dizziness
Intolerance to cold
Feet/legs fall asleep super easily
I'm a 28-year-old woman, in otherwise good health.
My doctor has scheduled a tilt table test in March. I'm scared to death about it. Doctors routinely struggle to draw blood or insert an IV, so any kind of procedure scares me. I had a baby in 2015, and it took 20 IV attempts and 3 epidurals before there was any success.
I guess I'm just hoping for some kind of comfort. Like, maybe this isn't such a mystery disease. After the endocrinologist told me he "had no answers" and the cardiologist told me "it's out of his hands," I just feel kind of hopeless.
Thanks for any support, stories of similarity, or good vibes to get through the TTT.