Hi Sarah. Thanks for the links. After 10 years of symptoms, I diagnosed myself but the Doc rubbished me. I insisted on standing for the period of my consultation and he reluctantly referred me to a Heart Specialist in 2013 who thought I had POTS. It isn't until now that I've actually been referred to a POTS Specialist. The referring Cardiologist said, in view of my high BP, there might be one drug, Midrodine I think, that they could try me on so I didn't want to give them the impression that my BP was low! They did give me a 24 hr BP monitor the week before but I don't know the results yet.
I've also had M.E. since 2000, hence the foggy brain and have other health problems.
I felt awful cancelling the appointment but it's my one chance to get a true diagnosis and I didn't want to blow it!
Has anyone else noticed that their symptoms improve if they've got something like a cold. Also eating only 500 calories occasionally in a day (now that doesn't happen very often as I love my food!) seems to help as well.