God, this symptom! I had it VERY bad years ago and it resolved mostly and was so much relief.
Not sure why it resolved, most likely the fludrocortisone which has stopped working and im going up my dose to see how I feel.
However, I have no idea what's causing it apart from it has to be related to blood flow and pots / dysautonomia surely? Maybe it's disrupting the blood Ph / CO2 or something?
Any how, I had before:
Lung CT - normal
Lung Function - Excellent
All heart tests - Perfectly normal heart structure and ejection fraction etc..
Tried asthma inhalers and inhaled steroid.
So now it's returned, I need to really find out and doctors these days aren't very helpful with things they can't "simply" find.
Is there any tests I should be asking my doctor for? The only one I can think of is an Arterial Gasses blood test.
I just need to find an answer as it's like suffocating. It's not anxiety or hyperventilation. It's 100% some physical response.
I've started exercising again to try see if it helps, exercise does not make it worse, it stays the same...which is strange.
I do find when im doing something upright it makes it worse and laying on my front completely flat relieves it some what and I have to lay there for a while until
it sorts itself out or becomes more tolerable.
It's just umbareable and makes me miserable, when I can get a deep breath it feels like hard work and exhausting.
Blood pressure will be perfect, 118/70 and heart rate 60, so clearly the body isn't under stress, maybe it's a false sensation from low blood volume?
Cheers!