Thanks for the warm welcome, ladies. I am sorry we are all in the same boat...
Honestly, I felt Really unwell for 2 days but today I managed to use my bike, went for a walk, spent the day outside and went shopping twice. And showered lol I tend to try to squeeze in as many activities as I possibly can while I can which might be bad idea but I'm so scared of being stuck in bed again..
MomtoGuilliana, happy to hear you are doing well. I do see a naturopath and a POTS doctor in my county. I am seeing her next week.
Bladerunner, first time I recovered with Zoloft, Klonopin, tons of rest, live in nanny, water physical therapy, EMDR, compression stocking, Powerade and lots of aggressive standing. I never stopped my meds but dropped everything else through the years. Just bought 25 Powerade and new Sigvaris socks and I am starting all over...
i don't think I ever recovered actually. What do you all mean when you say it? I mean I am symptomatic but feel ok enough to function. My pulse keeps being all over the place, but if it goes from 85 to 115 I am functional. Initially it was 160 when I stood up and 140 sitting....