angelloz

I have horrible insomnia so I try to really relax before bed. When I lie down and get comfortable after a short period of time I get a weird feeling. Sort of like my BP drops and I feel very uncomfortable. Takes a bit to recover. It happens almost every night. Anyone else?

I had Covid in February. A mild case. Was vaccinated and boosted. Now here in July I am having more autonomic issues than I have had in many years. Low BP, without the tachycardia as in the past. Severe head and neck pain.Frequent nausea. I am 63. Don’t know if I can fight my way to better days again. My last problems began at menopause around age 50. Low blood volume was a major issue so lots of salts and fluids. After years I was so much better. I don’t know if Covid has caused this or something else.

I will try that. Thank you.

I have awful tinnitus. Did not have this with my first go round with dysautonomia. This is driving me crazy. Especially at night.

I do get spells of feeling quite hot. At times I am even running a low fever.

Years ago I had head pressure , like a brick on my head when I was upright for awhile. This eased over the years. Now it is back and includes pain in the back of my head. It is more severe than before. It also includes ringing in my ears. My doctor is going to check for a csf leak. Right now I am on bedrest. Does anyone have orthostatic head pain as a primary symptom? I also have migraines but this is nothing like that.

Well I had this years ago then it went away. Within the last month or so many symptoms including that one have returned.

Along with the orthostatic headaches I have developed crackling sounds in my head. Anyone else. Sounds like rice krispees or gritty sand. Also now have tinnitus

Years ago I had the same issue for several years. 2 hours was a good night. I got through it by listening to my radio with an ear bud. I didn’t put it in my ear just turned it up a bit and nestled it in my pillow. I would listen to NPR. It at least relaxed me a bit and I would feel calmer. Sometimes I would fall asleep.

Rats! Not much here in Kansas either.

My body gets freezing cold and then very hot. Sometimes when I am hot I do have a low fever. Under 100. Anyone else?

I am doing ok with walking , however I always get an orthostatic headache whenever I am upright for any length of time. Does anyone else get the orthostatic head pain? Any suggestions?

Interesting. It looks to me as though your lowest BP’s are first thing in the morning.

I have been doing pretty well for several years with low BP and tachycardia. Suddenly the past two weeks have been back to the way I was years ago. What happened? I am now 63 years old. In the experience of all of you which is most likely. 1. Even though fully vaccinated I had Covid in early February. Could this be a delayed reaction? 2. I am decreasing my migraine triptan medication which is a vasoconstrictor but I have done this before with no I’ll effects. 3. I have been diagnosed with lipedema( not lymphedema ) and have decreased my salt very slightly. I am feeling pretty low after having come so far. I have been doing 10,000 steps a day. Today I can barely stand for any length of time.

12 years ago I had a tetanus booster. I was 50 years old. Two days later began my journey with autonomic dysfunction. It took about 6 years to improve and get some of my life back. I now need my booster again. I know there is no way to know for certain that the booster was the cause of my autonomic dysfunction. I am scared however. I don’t think I can go through those early years again. I was bed bound etc. My doctors cannot promise that there is no correlation. I live on a farm and often get cuts. Any thoughts?