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jcad9: Sounds very familiar. My 26 year old daughter was diagnosed with POTS before she was diagnosed with Lyme disease. I'm so sorry that you too are suffering from Lyme. It's great that you are seeing a Lyme specialist. Progress can be slow but at least you are seeing some improvement.

Great news! So glad Tyler is doing better.

Janet: We battled insurance company for months trying to get IVIG approved for my daughter. They finally approved 10 doses. She has completed 8 so far and we notice no improvement from it.

Rachel: So sorry to hear about Tyler not feeling well (and your hubby). I hope you can escape catching what they have!

Rachel: I'm glad you and Tyler saw some improvement (even if it is small changes). Keeping my fingers crossed that Tyler will continue to improve!!!!

Can anyone tell me if (and how) they have had IVIG approved through their insurance company. My daughter has POTS and has recently tested positive for Lyme. A few years ago her neuro tried to get IVIG approved and it was denied. Any suggestions would be appreciated. Thanks!

Rachel: I'm keeping my fingers crossed!!! Pam

Rachel: We had this test done for our daughter a few years ago (we were desperate for answers!) We didn't find out anything significant from the test. I probably wouldn't do it again - pricey and not any valuable information (at least in our case).

Best wishes to Tyler! Hang in there - I know it's hard for you as a parent to watch your child have to go through all of this.

Clb75: I don't remember how long it took for it to get out of her system (it's been several years since that happened).

So sorry this happened to you! The same thing happened to my daughter. One small dose of Lexapro caused us to have to call an ambulance because she collapsed and we spent the next 12 hours in the ER. She tried another kind of SSRI and it caused the same reaction.

Katybug: How long ago were you diagnosed with Lyme? Are you feeling any better? (I ask because my daughter who was diagnosed with POTS in November 2011 was diagnosed with Lyme about 6 months ago).

This is so common. When the doctors have no answers it seems they use this term so that at least they can give a diagnosis (instead of saying "I don't know"). I can tell you that I have had a lot more respect for the doctors that have told us "I don't know" instead of trying to label the problems as anxiety.

June: What did her heart rate do during the TTT? (My daughter's blood pressure is never affected by her standing up - but her heart rate soars). Pam

Rachel: Wow! Tell Tyler to hang in there. You must also be exhausted. I know how stressful it is seeing your child go through such an illness. Continue to stay strong!!! Pam