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I can’t have caffeine as it overstimulates my nervous system.

That’s interesting to read. Thank you. I’ve recently started injecting growth hormone as I have a deficiency and it’s slowed down my tachycardia enough to stop taking Nebivolol.

Hi. I have EDS and POTS. I’ve got varicose veins around my rectum and butt cheeks. I’m guessing they are there as I sit a lot and have my legs elevated. Other people I know get them around the back of their knees as they sit normally.

Caffeine is a stimulant and it over excites the nerves

I’m low carb, vegan mainly an anti inflammatory diet. No caffeine, gluten, dairy, sugar, processed, spice, alcohol. Lots of veggies!

Yes, makes my nerves more comfortable and gives me a bit more energy. I’m vegan anyway so always topped up a bit and I’m glad I did as I can show deficient in iron and D3 as I have some absorption issues.

It helps me. I inject weekly and take sublingual B12 daily

When my dysautonomia reared it’s ugly head at the same time as Small Fibre Neuropathy in 2007 I was told it was the way I was thinking caused it. I was shocked but not surprised. Doctors often say things are psychological when they don’t know what it wrong or how to treat it. Every condition I’ve ever had have often been documented as being from a psychological origin. I’m wary of doctors. The good ones do all they can for us the poor ones haven’t got the guts to say “I don’t know”, as their egos won’t let them so they imply it’s created in our minds.

My BP has been up and down for years. It can fluctuate several times per day or be specifically low/high for days/weeks/months on end.

I’ve been getting this problem and linked it to my vagus nerve. As I have EDS my neck isn’t in great shape so I’ve been working with an osteopath to help with the neck nerve entrapment

Yes. Many have mast cell/histamine issues. I’ve had to radically overhaul my diet to cope. I also get reactions to meds and household items like cleaning products and toiletries. I eat low carb, no sugar, dairy, caffeine, spices, gluten or processed. I eat low histamine foods. I take a antihistamine if I can’t avoid certain foods like in hospital etc. i supplement where possible.

I stopped drinking caffeine drinks years ago as I was getting very jittery and sick. Of course I realised why when years later I was diagnosed with AD and POTS. The caffeine is a stimulant and makes nerves buzz!

Keep hydrated. I drink 8pts of mixed fluids

I was diagnosed by a rheumatologist at my request. Based on my clinical history, examination and Brighton Scale. Link through my family is IBS and spine/neck degeneration.

I have one I don’t use it every day but when I have a flare of neck/heart/chest/gut issues I use it on a low setting. I found out about it on social media. Some people have an implant of a vagus nerve stimulator.