evelynh

Pediatric Neurologist w/ dysautonomia experience in Midwest?

5 posts in this topic

The title says it all. I've checked the directory on this website but quite a few seem outdated :(

Any folks with experience seeing pediatric neurologists in the midwest , who specialize in POTS/dysautonomia?

Thanks in advance!

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Dr Thomas Chelimisky is in Milwaukee.  My son was seen by him when my son was 14.  He is now 22.  Dr Laurence Kinsella (St Louis) is our current neurologist and he started seeing my son when he was 15. 

If you go to the Mayo Clinic in MN, we saw Dr Phillip Fischer.

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We called Dr. Kinsella, his office said he doesn't see pediatric patients. Why would they say that? Maybe that has changed in the last 7 years?

Thank you for your suggestions, I will check them all!

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How old is your child?  I happened to come across his email address and emailed him directly before making the appointment.  He said he would see our son.  I had to tell them when I scheduled the appointment that he agreed to see us.  I know he has seen other pediatric patients, but I'm not sure how young he goes.   I referred another patient to him who we met at the Mayo Clinic and he got in as well.

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