Roxy Posted April 17, 2017 Report Share Posted April 17, 2017 So I recently found out I have left ventricular hypertrophy and diastolic dysfunction. So far the doctors are in the we need to find out what is causing this stage. Anyone else have this with POTS and NCS? What about early onset cataracts? Quote Link to comment Share on other sites More sharing options...
Weyland Posted April 17, 2017 Report Share Posted April 17, 2017 When I was diagnosed with pots at mayo clinic ,my heart echo results said left ventricular remodeling. Then I had a second heart echo at a different hospital and didn't say anything about remodeling. So who knows ,guess I will get a third opinion someday lol . My advice would be to get a second opinion to make sure you have these abnormalities. Age and heredity also factor in .. Quote Link to comment Share on other sites More sharing options...
haugr Posted April 17, 2017 Report Share Posted April 17, 2017 My echo results showed mild lvh and mild diastolic dysfunction. I think that one cause of both is just high blood pressure, which is what my doc told me was most likely my cause. Have you had high blood pressure by chance? Quote Link to comment Share on other sites More sharing options...
Roxy Posted April 17, 2017 Author Report Share Posted April 17, 2017 No high blood pressure and multiple echos and other tests, same results. One possibility is the tachycardia, that is main thing being checked currently. Was trying to see if others have it, or if my genetics are playing a part in this one. Thanks for the replies. Quote Link to comment Share on other sites More sharing options...
Weyland Posted April 17, 2017 Report Share Posted April 17, 2017 Are you taking any beta blockers or cardiac meds for your tachycardia ? I haven't found one that my body likes so far. ... Quote Link to comment Share on other sites More sharing options...
Roxy Posted April 17, 2017 Author Report Share Posted April 17, 2017 I am on ivabradine 7.5 mg twice a day, atenolol but not for high blood pressure, and roughly 16 other meds for all the other issues. I see a cardiologist, neurologist, pulmonary rheumatologist, dermatologist, GI,endocrinologist, infusion clinic, primary care, allergist... cardiology is the main care provider because he has a background in dysautonomia and has the final say in my meds. I have to go off the atenolol once a year for a few weeks or it stops working, my body gets where it doesn't work without the break from it. We haven't found any others I can tolerate or am not allergic to. Quote Link to comment Share on other sites More sharing options...
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