ringsmackie Posted March 1, 2017 Report Share Posted March 1, 2017 Hello! I came here a month or so ago to see if my symptoms sounded familiar and report that I'm getting a title table test. Well, that day is almost here. Tomorrow is the test, and I'm absolutely terrified! I know it's not a big deal and that it's a routine test. But, they said I have to get an IV and I'm a fainter when it comes to needles. I'm making myself sick thinking about it. I haven't slept and haven't kept down much food either. I think my biggest fear is that I'll be so anxious I somehow mess up the test and skew the results so they can't diagnose me. If that makes any sense. Anyway, just wanted to update everyone and thank them for the support! Any tips on how to relax during the test?! Quote Link to comment Share on other sites More sharing options...
dancer65 Posted March 1, 2017 Report Share Posted March 1, 2017 Wishing you luck for tomorrow. I was really worried I would flunk the test but after 15 mins my consultant informed me that they would continue with the test as they were having interesting reading , at that time I felt OK so I was suprised , 10 mins later it all got even more intersting and the symptons started to hit me and I eventually passed out ! Try to relax ( I know almost impossible ) and I hope this gives you some answers Quote Link to comment Share on other sites More sharing options...
kalamazoo Posted March 1, 2017 Report Share Posted March 1, 2017 I was extremely anxious during mine too, i think it's expected and somehow factored in because they didn't need to alter or redo it Quote Link to comment Share on other sites More sharing options...
KiminOrlando Posted March 1, 2017 Report Share Posted March 1, 2017 I looked at my test as a relief that someone finally believed me that something was wrong. I was so happy that I was about to get help, I didn't care what they did to me. I saw it as the last step before things got better. It is all about perspective. Good luck and let us know how it goes. Kim Quote Link to comment Share on other sites More sharing options...
corina Posted March 2, 2017 Report Share Posted March 2, 2017 Good luck on your test ringsmackie! May be telling the nurse/doctor about your fears might help them understand and be gentle. Quote Link to comment Share on other sites More sharing options...
angelloz Posted March 3, 2017 Report Share Posted March 3, 2017 I am certain the people running the tests understand how stressful it can be. Just think...this is progress toward getting a diagnosis and some treatment! Good Luck :). Quote Link to comment Share on other sites More sharing options...
ringsmackie Posted March 3, 2017 Author Report Share Posted March 3, 2017 Tilt table is complete, and they skipped the IV because they couldn't find a vein. Apparently, I broke the record for fastest test, too. They tilted me, and I fainted in 60 seconds. Yay for breaking records?? The man running the test told me I have Neurocardiogenic Syncope. They put me on Fludrocortisone, told me to eat more salt (?!), and cut all caffeine... yikes. I asked the technician about POTS, and he laughed at me. He said it's over-diagnosed and not to worry about it. This makes me a bit uneasy, so I'm hoping to get my results so I can be sure. Either way - I'm happy to have a diagnosis of NCS. Quote Link to comment Share on other sites More sharing options...
KiminOrlando Posted March 3, 2017 Report Share Posted March 3, 2017 Congratulations! You failed with flying colors. I'm not sure what the real difference is between Neurocardiogenic Syncope and POTS. I have been diagnosed with both. I think treatment is basically the same. Florinef helped me a little and I am still on it. You are on your way to feeling better. So happy for you! Let us know how the new med works. Kim Quote Link to comment Share on other sites More sharing options...
yogini Posted March 5, 2017 Report Share Posted March 5, 2017 I would be very annoyed with that response from the technician. Did you get to meet with a doctor about your test results? It's normal question for you to ask if you have POTS after the TTT - and a simple yes or no answer from them based upon whether your HR increased 30bpm during the test. POTS certainly isn't over-diagnosed, it is way under diagnosed. If you click on the DINET main page under information, it will explain the difference between POTS and NCS. You can have both - they are both dysautonomia. There are some differences, but many of the treatments are the same. Quote Link to comment Share on other sites More sharing options...
ringsmackie Posted March 7, 2017 Author Report Share Posted March 7, 2017 On 3/5/2017 at 10:39 AM, yogini said: I would be very annoyed with that response from the technician. Did you get to meet with a doctor about your test results? It's normal question for you to ask if you have POTS after the TTT - and a simple yes or no answer from them based upon whether your HR increased 30bpm during the test. POTS certainly isn't over-diagnosed, it is way under diagnosed. If you click on the DINET main page under information, it will explain the difference between POTS and NCS. You can have both - they are both dysautonomia. There are some differences, but many of the treatments are the same. I thought so too! I have a call in to my doctor because I haven't heard from him yet with the official diagnoses. Hoping to hear soon, and get my hands on the results too. Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted March 7, 2017 Report Share Posted March 7, 2017 I agree--I doubt POTS is over-diagnosed. I am also concerned that a technician would try to diagnose! Hope you can talk to your doctor soon. Quote Link to comment Share on other sites More sharing options...
Misskitty Posted July 19, 2017 Report Share Posted July 19, 2017 Wow! My Dr. ran the test. It was pretty horrible. I had an episode when they put in the iv. TTT was positive of course. Florinef and nadolol. My diagnosis saved my life❤❤❤ Quote Link to comment Share on other sites More sharing options...
WinterSown Posted July 19, 2017 Report Share Posted July 19, 2017 A technician laughed at you? I would report it to human resources. That's outrageous. Dysautonomics are treated abysmally, I really would send a strongly worded letter to his employer AND your county medical supervisory board. This person needs retraining and should not be around patients until its completed. Quote Link to comment Share on other sites More sharing options...
KellyA Posted July 19, 2017 Report Share Posted July 19, 2017 Just curious what the IV was for? My TTT didn't have one. I'm still waiting for final results. Quote Link to comment Share on other sites More sharing options...
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