DizzyGirls Posted January 12, 2017 Report Share Posted January 12, 2017 My youngest daughter (18) has been having pretty high blood pressure off and on (morning, mostly) for a few months. It was actually 160/100 hr 105 this morning, but it generally hovers around 140-150/low 100s. She also has been having worse sleep paralysis and has been getting more and more fatigued. Really tired, like she just sits down and falls asleep. I would say debilitating fatigue. She has chronic vertigo, EDS III, and, of course, dysautonomia. She also, at times, has an irregular heart beat. It beats irratically. I know with hyper-POTS there's high blood pressure and high heart rate. Is that correct? It's late, I might have that wrong. Any of this sound familiar to anyone? Quote Link to comment Share on other sites More sharing options...
SarahA33 Posted January 12, 2017 Report Share Posted January 12, 2017 Hi there! DG, I'm sorry to hear this news not entirely sure if sleep paralysis affects BP, but I know insomnia can cause hypertension. https://webcache.googleusercontent.com/search?q=cache:WZLjrOPanxgJ:https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Narcolepsy-Fact-Sheet+&cd=3&hl=en&ct=clnk&gl=us POTS symptoms can change over time, possibly she could need a change in bp meds? This is a great article by our medical advisor, Dr. Raj, where you'll find a lot of info on hyper pots and other types. http://journal.frontiersin.org/article/10.3389/fphys.2014.00220/full I don't see anything related to hyper pots & bp, but that would be a good question to submit to him for our Med Q&A Column in the newsletter! DinetandForumInfo@dinet.org Quote Link to comment Share on other sites More sharing options...
kalamazoo Posted January 12, 2017 Report Share Posted January 12, 2017 Yes, I have high bp and high hr. I changed to a vegan extremely low sodium diet which helped. I also drink a ton of water. Am extreme amount. That also helps. My hyper pots gives me issues in the day and the morning but I'm okay at night. My symptoms are all over the place but my diastolic is high. My BP is usually 130/95. It's been all over the place lately too. I have propranolol, it kind of held but doesn't lower my BP too much. Just makes me feel more stable as far as hr spikes Quote Link to comment Share on other sites More sharing options...
yogini Posted January 13, 2017 Report Share Posted January 13, 2017 Has she talked to her doctor about trying a beta blocker? BBs generally lower HR and BP Quote Link to comment Share on other sites More sharing options...
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