~Naomi~

What Are Your Worst Symptoms?

32 posts in this topic

Just curious to see what other people's POTS experience is like. Wondering if we all feel kinda the same yuckiness or if different things bother different people. Here are my top 5 in order, with the worst being #1.

1. Weird feeling in my head/feel off balance, drunk/cognitive problems

2. Eyes feel out of focus

3. Heart symptoms - tachycardia/sensation of heart beating hard

4. Fatigue/Exhaustion

5. Multiple Chemical Sensitivity

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For my son:

1. Severe nausea, daily

2. Fatigue/Exhaustion

3. Tachycardia

4. Headaches

5. Tremors in hands (getting worse)

And now he has a new problem the last couple of weeks,- charlie horses in his calves.

Christy

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Top 5 symptoms in order of worst with 1 being the worst.

1. lightheadedness (feeling like i'm going to pass out)

2. head weirdness/pressure

3. brain fog ?

4. trouble breathing

5. heart palpitations

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1. Fatigue/ Exhaustion/ feels like I haven't slept at all even though I have

2. Tachycardia

3. Dry eyes; weird pulsing in eyes

4. Pain and heavy feeling in back of head and neck

5. Brain fog and feeling like things are never in focus

Lynne

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1. Fatigue

2. Trouble concentrating/brain fog

3. Achiness everywhere

4. Burning pains particularly in my feet, hands, face, and mouth with a metallic taste in my mouth

5. Nausea/GI pain

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Mine are as follows:

1. Chest Pain/Pressure, tachycardia

2. Shaking & Tremors

3. Dizziness/Loss of Balance & Fainting

4. Sleep Disturbance, either can't sleep or sleep forever

5. Recently Neck Pain has started

I used to have severe headaches all the time but the Beta Blockers have helped tremendously with that.

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1. Dizzy/near syncope

2. burning pain in toes, feet shootin up legs

3. Muscle twitching/cramping

4. Headaches/Aura/concentration/mood swings

5. fatige/ sleep problems

tied for 5th= increased symptoms starting 4 days before period to include Lower GI problems.

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For my daughter -

1) Dizziness and feeling faint like she could pass out at any time

2) Extreme fatigue

3) Pounding headache with pain up the back of the neck and head

4) Fingers feel numb and tingly

5) Nausea anytime she eats or drinks

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1. Head and neck pain, all day and all night

2. Lightheadedness

3. Nausea/vomiting

4.jelly legs/heavy legs

5. Pins and needles hands, feet, face, head

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1. Lack of energy (not fatigue, but lack of energy to begin with)

2. Brain fog on good days, confusion on bad days

3. Muscle weakness

4. Blood pooling

5. Sleep disorders

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1. Heat intolerance/heat flush

2. Chest tightness when upright

3. Full feeling in head, yet lightheaded

4. Blurry vision/pressure in eyes

5. Tachycardia when upright

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1. Tachycardia

2. dizziness

3. fatigue

4. headaches/nausea

5. leg pain

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1)Heat intolerance

2)tachycardia

3)anxiety, "crazy" wired feelings

4)shakiness

5)exercise intolerance

Probably should have put shortness of breath in there too. Doh!

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1. Debilitating Fatigue

2. Tachycardia resulting in shortness of breath

3. Brain Fog

4. Nausea/GI Symptoms

5. Frequent Migraines

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I am pretty much like naomi...

1) Feeling drunk, unstable, lightheaded, dizzy

2) Very bad vision issues (my eyes never focus right, I feel like I am consantly straining them to see, pressure, and everything looks "off" at all times.

3) Fatigue

4) Nausea

5) Muscle weakness

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1. Dizziness/Lightheadedness/Vertigo; sometimes even moving my eyes starts an episode

2. Fatigue; no amount of sleep or rest alleviates it

3. Nausea; non stop even with meds have tried PPI's OTC meds nothing helps; non stop nausea started after surgery in Aug 2009

4. Extreme Heart Rate fluctuations; low to high without provocation - Bradycardia then it will go into Tachycardia even sitting

5. Extreme BP fluctuations; low to high and then will bottom out without warning or provocation

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Great Thread and interesting to see what everybody's Top 5 are. Wish we could take it to some clinic for ALL of us and say here...fix us please :rolleyes:

Thanks for posting this Topic...keep the responses coming.

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1. The severe exhaustion/weakness mixed with an indescribable 'sick as death' feeling 24/7.

2. Severe/crippling nausea 24/7 also, some vomiting.

3. The headaches.... 24/7 also.

4. Brian fog/cognitive dysfunction to the max sometimes. (memory loss up to weeks at a time W/lots of confusion.

5. Urination sometimes up to 30-40 times a day along with diarehea from 8 am till about 5 pm......

That really doesn't even 'touch' it..... :(

tennille

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My worst symptoms

1. Feeling constantly like I am coming down with the flu. I can't actually remember anymore what it feels like not to be sick.

2. Light headedness / vertigo so you can't even move your eyes without the room spinning.

3. fatigue / exhaustion. You've slept 12 hours and you are still tired.

4. cold hands, my finger nails turn blue and my hands throb with pain.

5. Only feeling ok if I am lying down flat. Bit difficult to live your life that way.

I have tonnes of other symptoms like pain but thats the EDS or being so short of breath you spend hours on an oxygen concentrator so you feel like you can breathe but thats probably undiagnosed maysthenia gravis.

Rach

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1. fainting

2. fatigue

3. brain fog

4. nausea

5. hand tremors

Brye

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1. Exhaustion/Fatigue

2. Cognitive Impairment

3. Eye Disturbances

4. GI Issues

5. Depends on the Day: Weakness/Aches/Pains, Flushing/Itching, Dehydration, etc.

It's so hard to pick 5....It really depends on the day.

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1. shortness of breath - sometimes related to weather changes, heat, humidity, exercise

2. mild to severe chest compression &/or sensation of heaviness in back, spine, legs, etc.

3. heat and humidity intolerance

4. exercise intolerance

5. tachycardia and intolerance to emotional stressors

Prior to taking Florinef in March 2011 my worst symptom was light-headedness and pre syncope, but Florinef has really helped with that.

I also had severe chest compression 24/7 for the first 12 months but this started to ease up in the second half of last year.

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1.Fatigue

2.Chest pains

3.Dizziness (off balance while upright)

4.Headaches with the auras, blurred vision, numbness

5.Dealing with a different symptom every day I wake.

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My sons:

1. Extreme fatigue

2. Severe memory issues

3. Itchy skin, flushing

4. Migraines, daily headaches

5. Sleeping issues

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1. Neuro pain

2. Exhaustion

3. Inability to stand w/o heart rate increasing

4. Loss of work

5. Sleep problems

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