The Patient's Voice
Views expressed in The Patient's Voice are not necessarily those of the Dysautonomia Information Network or its members.
Share your experiences in The Patient's Voice!
The Patient's Voice is a newsletter column where patients can express themselves while writing about experiences relating to dysautonomia - both positive and negative. It is a place to share medical experiences, suggestions, short stories and poetry, etc. Send contributions to: staff@dinet.org.
What Am I!
by DiAnna Fogle
Most times I’m tired, but sometimes I’m wired,
Most of the time I’m dizzy, so I try to keep busy.
My heart will race, so I concentrate hard to keep pace,
When my heart beats slow, I sometimes feel low
If I get too hot, I’ll collapse on the spot.
If I get to cold, just use a blanket I’m told.
Most days I hurt, and I’m not always alert
Today I can’t breathe; I’ll just continue to wheeze
When my body begins to shake, it won’t be long; I’ll begin
to ache
I have pain in my chest, but may get better with rest
My muscles get weak, and some days I can barely speak
If I stand to long, everything will go wrong
Most nights I can’t sleep, most days I just want to weep
My glands may swell, and most days I don’t feel well
But each day that I wake and see the Sun, I realize another day I have
begun
I know I will make it through this day,
With the strength of God I continue to pray
Lord Please make me strong, because in this world I know I belong
I have a life to live, and so much love to give,
I will continue to hold my head high, and everyday I will always
continue to try
To Live and Love and Fight and Strive
I am a POTS patient and I will SURVIVE
Live on and Be Strong
Peace and Love to All
| In this Issue: |
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T-Shirts/Help Wanted |
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Meet the Member |
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Press Releases |
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Research in Review |
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The Patient's Voice |
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Emma's Corner |
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Thank You
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Dysautonomia
News exists to inform and educate. The content should not be used as a
substitute for professional medical advice, diagnosis or treatment.
Readers are encouraged to confirm all information with other sources
and a physician. Please keep in mind that research is evolving and
future discoveries may change or disprove some currently held beliefs.
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