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  2. I used dermalmd stretch mark serum my entire first pregnancy, ended with no stretch marks and made my skin feel soft everyday. Highly recommended!
  3. I have Crohn's Disease and have been taking Humira 40ml Injections every other week for almost 1 year, also taking Imuran (Azathioprine) 50mg 1x a day for also about a year. I have not had any side effects, although my Creatinine levels are now rising and Kidney doctor is unsure why. I was just diagnosed with Chronic Idiopathic Uticaria (Chronic Hives, caused by Immunodeficiency). My allergy/Immunology specialist is suggesting Xolair as all other scripts I have tried have failed. Has anyone taken Humira and Xolair together? There doesn't seem to be much literature or medical studies on taking the two combined. I also have Fibromyalgia, Chronic Migraines, and I just had my first hip replacement, have to have the second next year, as well as both knees replaced. Thanks!
  4. this happened to me yesterday , im a freshmen by the way, i was in my algebra class and i had my bluetooth speaker on my desk, we were tsking a test and i accidentally knocked it over and it hit the floor, my heart rate went very very slow like boom.....boom......boom , it sounded like one beat and it was loud and slow as well but i dint know why it happened
  5. My biggest strike against having hyperPOTS is my blood pressure doesn't rise. Since this all started it moves more but only like 5 or 10 points. And that is just daily reading not tilt table readings. Can you have hyper without the blood pressure change?
  6. I cannot definitively say, but when I posted a question about it, the responders were those with hyperPOTS.
  7. Buffrock is irritability and mood swings not normal for regular POTS?
  8. Not sure if I have hyperPOTS, I suspect I do because blood pressure goes up and I have irritability when standing. Overlapping noise is a big issue for me, sudden loud noises too. Mornings are worse for me, I can be fully functional in the evening.
  9. My body goes through phases. It is almost like if I eat it makes my stomach bloat and makes all my symptoms drastically worse. When it happens I avoid heavy foods, so no potatoes or breads. Eat tiny meals only when hungry. It usually lasts a week or so and then I slowly reintroduce my heavier foods. Pizza is one that gives me a lot of trouble. But as long as I don't eat a lot of it I can still have it.
  10. Does anyone else notice loud noise or overlapping noise (like crowds or mutiple people) makes it worse? Or mornings are better than evenings?
  11. Finnmin I am not sure. I imagine I did so I could keep my mind off not having many cigarettes and absolutely no caffiene. I never thought about it. I spoke to my pcp the other day and she is sending me to an endocrinologist to see if he can do the blood test. I requested that test because of some new information I got from my dad. But now I am wondering if I did it "wrong".
  12. Yes, if you can manage the bp cuff without moving too much, go for it. A drop in blood pressure is orthostatic hypotension and the body compensates with increasing heartrate. My PCP checked blood pressure first to rule out orthostatic hypotension before I got a referral to investigate further. In my opinion, in this phase of data collection and discovery, it is beneficial to also track fluid intake, sleep, nutrition, stress, and anxiety. Why? Because these are very basic things that you can rule out at home as causing symptoms. Malnutrition (like eating disorder level) and dehydration cause these symptoms, and anxiety has very similar symptoms. Many people get dismissed as "eat more" or "see a therapist for anxiety" rather than getting a referral to confirm diagnosis. I had 13 year history of misdiagnosis with psychiatric conditions, so I was very wary of being dismissed. I collected data for week and by the time I had my appointment with my PCP I had identified that my mood changes which were previously misdiagnosed as bipolar disorder correlated to my body position, with occasional mood shifts with blood pressure changes. That info, along with graphs of heart rate data and his quick confirmation of tachycardia withou hypotension upon standing got me a preliminary POTS diagnosis and referral to neurology straight away.
  13. Yesterday
  14. Thank you very much for your response, I will conduct another test later this evening. Also - should I monitor my blood preasure during the test? I have a wrist cuff I could use. I'm new to pots and understanding it, and have seen some members post BP can play a role in diagnosis. Thank you!
  15. That looks suspicious for POTS. I'd suggest more testing at home. Lie down flat on your back for at least 15 minutes. Stand up quickly and don't fidget or tense your muscles, try to not move at all. Test in the morning also, since symptoms tend to be worse in the morning and in research on POTS the tests are done in the morning. Only about 30% of people with POTS will faint, so don't worry about that. I've only fainted once. It was after standing for 10 minutes, my pulse was 120, I gestured with arms overhead and walked away, fainted after a couple of steps. I wonder if putting my arms over my head was why I fainted? Stay curious and please update as you gather more data and begin exploring the possibility of POTS.
  16. No food triggers here.
  17. Hello, I'm a 21 year old guy and know pots is fairly rare for men, however lately I've noticed my heart rate flies when I stand up. It's also very apparent when I do minimal physical exertion such as walk around my apartment or clean. My resting heart rate varies between 60-70 and sometimes reaches 55. I am 6 foot tall and weigh 145lbs. I did a standing test and here were the results: Resting: 74bpm (higher than usual) Standing: 84bpm (immediately after standing) 4 minutes: 90bpm 6 minutes: 93bpm 8 minutes: 103bpm 10 minutes: 98bpm As soon as I laid down: 60bpm I don't usually get too lightheaded and I've never passed out, but this was a more mild example of how my HR climbs. Sometimes it will reach 110-120bpm. Thoughts?
  18. What foods trigger your pots? Can you eat pizza or bread or anything? What can you eat?
  19. What foods trigger your pots? Can you eat pizza or bread or anything? What can you eat?
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  23. S@HM & Finnn- do you or your husband get migraines? That is a very common characteristic of hyper pots as well, as is anxiety like Buffrockchick mentioned, more so while upright. and flushing. Often both supine and standing NE levels are obtained, 15-45 minutes after the patient is left in quiet room, and then 15-45m minutes after standing upright, depending on the lab. Some doctors also additionally measure levels during a tilt table. Here is an older thread:
  24. Thank you. Did you spend most of the day in bed, or sitting, or on your feet when doing the 24h urinary test? I'm thinking if hyperPOTS would reveal itself if my husband would try to be upright more -> more catecholamines in the urine, if he is hyper.
  25. Hello, I actually have several thoughts on this. But first, Wish you were feeling better. I have been told that watery eyes and neck pain can come from migraine. In other words migraines causing neck pain and not the other way around like we usually hear. I also have MCAD and I suspect a connective tissue disorder although have not been diagnosed with EDS. When I have the eye issues that you speak of, sleeping with my head more elevated seems to help. Sometimes putting an ice pack under my chin on those glands helps me. A low dose of magnesium before bed has helped a bit too. It is a terrible feeling when you don't feel right at all. It is good that stopping fruit has had a positive effect on your head pain. Do you take anything for your mast cell issues? For me it seems that most medications tend to make me feel worse. Let me know if You have any questions about anything I mentioned. I will probably think of something else later...I am a bit worn out this evening.
  26. Last week
  27. I had the 24 hr urine test and it all came out normal. I have an appt with an endocrinologist next month to test the blood. As far as I know as long as the test is done correctly by the patient it should be accurate.
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