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*See specific pages for references.
Dysautonomia News Winter 2008
The new year brings new plans for DINET!
A multicenter study on treatment of autonomous nerve-mediated syncope in children with beta-receptor blocker. Chen L, DU JB, Zhang QY, Wang C, DU ZD, Wang HW, Tian H, Chen JJ, Wang YL, Hu XF, Li WZ, Han L. Zhonghua Er Ke Za Zhi. 2007 Dec;45(12):885-8. PubMed
A Matched Case Control Study of Orthostatic Intolerance in Children/Adolescents With Chronic Fatigue Syndrome. Galland BC, Jackson PM, Sayers RM, Taylor BJ. Pediatr Res. 2008 Feb;63(2):196-202. PubMed
Nitric Oxide deficit may play a role in POTS symptoms. Nitric Oxide (NO) is a very simple molecule whose job it is to control blood vessel size with changes in blood flow, changes in blood vessels during inflammation and blood vessel leakiness (Stewart, 2005). Some POTS patients have a deficit of nitric oxide (Stewart, Taneja, Glover & Medow, 2008.). This deficit may relate to the nitric oxide synthase molecule called nNOS, but it also has a compelling relationship with the hormone angiotensin-II. Together angiotensin-II and NO may help to regulate sympathetic nerve activity in the brain and also in certain peripheral nerves (such as the splanchnic circulation). Moreover, angiotensin-II can result in increased oxidative stress which can itself reduce NO (Dr. Julian Stewart, personal communication, November 28, 2007).
Researchers have found that NO levels can be increased by blocking the most important receptor for angiotensin-II. This may lead to treatments in the future in select groups of POTS patients.
OI in the News
Rare heart condition not stopping Jeannette girls basketball player.
Svetlana Blitshteyn, MD
Kinkel Neurologic Center, LLP
5 Limestone Drive, Suite B
Buffalo, NY 14221
716-632-9399Dr. Blitshteyn specializes in autonomic disorders, headache medicine and general neurology. She is highly recommended.
****
Dr. Pariwat Thaisetthawatkul
Dept. of Neurological Sciences
982045 Nebraska Medical Center
Omaha, NE 68198-2045
402-559-4023
POTS
PAF, MSA, Pareneoplastic and other autonomic failures.****
Dr. William T. Talman
Autonomic Nervous System Clinic, Dept. of Neurology
University of Iowa Hospitals and Clinics
200 Hawkins Dr. 2100 RCP
Iowa City, Iowa 52242
319-356-8750 or 319-356-2571
POTS, NCS, PAF, MSA****
Dr. Evans
Medical Specialist Group
St. Peter Port
Guernsey
gy4 6uu
Channel Islands
(01481) 238565
POTS, NCS, Autonomic Failure, MSA
Very basic autonomic laboratory
Geriatrics?
Refers to St. Thomas Hospital London****
Dr. Nicholas G. Tullo
741 Northfield Ave., Suite 205
West Orange, NJ 07052
937-467-1544
POTS, NCS, Inappropriate Sinus Tachycardia, Chronic Fatigue Syndrome****
Dr. Jeffrey Kluger
80 Seymour St., P.O. Box 5037
Hartford, CT 06102
860-545-2883
POTS, NCS****
Dr. Barry Karas
Baystate Medical Associates
3300 Main St. Suite 2A
Springfield, MA 01199
413-794-7246
POTS, NCS, PAF/Secondary Autonomic Disorders, MSA
Autonomic Laboratory****
Dr. Caroline Klein
UNC Department of Neurology
3114 Bioinfomatics Building, Campus Box 7025
Chapel Hill, NC 27599
919-966-5522
POTS, NCS, PAF/Secondary Autonomic Failure, MSA, Autonomic Neuropathy****
Dr. Lawrence S. Rosenthal
University of Massachusetts Medical Center
55 Lake Avenue
Worchester, MA 01655
508-334-6194
NCSComments:
Dr. Rosenthal is not a specialist, but he does perform tilt table testing and prescribe therapies for NCS.
****
One POTS patient has found relief of symptoms by wearing a G-suit, and she has created a website that details her experience with this compression device. Her website begins "G-suits are pants that can save the life of a fighter pilot. G-suits are pants that have 'saved' my life too." Click here to visit this patient's informative website.
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