Dysautonomia News - Summer 2004

Volunteer

If you are interested in volunteering for any of the positions listed below, please contact DINET at: staff@dinet.org


We are starting a fundraising committee! We need members and friends who have experience in fundraising and/or grant writing to share ideas, come up with fundraising plans and execute them. Can you help raise funds to ultimately make the world a better place for dysautonomia patients? If so, please contact us.




We are still looking for someone to find useful links for our assistance page. If you can help, please contact DINET.




Do you want to share your experiences in The Patient's Voice?

The Patient's Voice is a newsletter column where patients can express themselves and write about experiences relating to dysautonomia - both positive and negative. It is a place to share medical experiences, suggestions, short stories and poetry, etc. Send contributions to: staff@dinet.org




We are always looking for physicians to critique our website. It would even be a help if a physician would critique just a page within our website. Share your expertise and help us be at our best! Please contact DINET if you can help.




We have a new volunteer! Jane Bennett will be taking over the Meet Others Program.

Jane is a mother of three, ages 9, 12 and 16. Her oldest child has been diagnosed with POTS for nearly a year. She lives with her husband of 22 years and family in the Chicago-land area. She is Eastern Orthodox and, with her husband, has supported numerous committees and youth groups over the years within their church community. In addition, Jane also has served as her children's elementary school treasurer for the past 10 years.

Jane has a BS in Business/Data Process from Northeastern University - Illinois and a MBA in Information Systems from Dominican University - Illinois. She is currently an executive for a major nation wide telecommunications company, where she has been employed for 22 years.

We are delighted to have Jane join us as a valuable, hardworking volunteer. Way to go, Jane!






 

In this Issue:


Attention: Meet Others Members

Volunteer

The Patient's Voice

Research in Review

We Work Hard So You Don't Have To

Thank You


Dysautonomia News is intended to educate. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and a physician. Please keep in mind that research is continually evolving, and future discoveries may change or disprove some currently held beliefs.
 

Dysautonomia News is a quarterly publication of the Dysautonomia Information Network.
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