The Patient's Voice
Views expressed in The Patient's Voice are not necessarily those of the Dysautonomia Information Network or its members.
“Glass”
Why do they look at me like they do?
Am I so different than they?
On the outside I look ‘fine’
But on the inside it is a different world
Doctors tell me ‘you are imagining it’
Family tells me ‘stop doing that’
‘You could hurt yourself’
‘You should rest’
‘Take care of yourself’
What about what I want?
Doesn’t that matter anymore?
Why won’t they listen to me?
Don’t they understand I’m sitting right there?
When they talk about me
When will they finally realize
I am not made of glass!
I am not a doll that should be put on a shelf
Just because I am sick, doesn’t mean I can’t still be a
mom, wife, friend
It doesn’t mean that I can’t help them anymore
Please see me for what I am!
I am a STRONG woman with dreams, wishes, and hopes too
I am a person who wants to help clean, cook, garden
Please let me help while I still can
For there may come a day where I truly can’t and I want to enjoy
it while it lasts-
Why can’t you understand that?
Lizzy 3-4-08
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Share your experiences in The Patient's Voice!
The Patient's Voice is a newsletter column where patients can express
themselves while writing about experiences relating to dysautonomia
- both positive and negative. It is a place to share medical experiences,
suggestions, short stories and poetry, etc. Send contributions to: staff@dinet.org.
| In this Issue: |
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Taking a negative
and making it a postive |
|
Meet the Member |
|
The Patient's Voice |
|
Q&A with the doctors |
|
Research in Review |
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Thank You
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Dysautonomia
News exists to inform and educate. The content should not be used as a
substitute for professional medical advice, diagnosis or treatment.
Readers are encouraged to confirm all information with other sources
and a physician. Please keep in mind that research is evolving and
future discoveries may change or disprove some currently held beliefs.
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Dysautonomia News is a quarterly publication
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